I think there is a world of difference between disability and disabling illness. I tend to say I have the latter, not the former. Many people with...
It's now over a year since we sent our first letter to Cochrane (28th August 2023), and started our petition (4th September 2023). It is fast...
I have just sent the following reply to Sonya Chowdhury. I decided to make it a personal reply rather than trying to get agreement from all the...
I think it depends whether you're talking about prevalence or incidence of new cases. I think prevalence of ME/CFS in older people like me is...
Thread on the PhD thesis that includes this research: Exploring the role of tryptophan metabolites in ME/CFS: Development and application of high...
A published paper from this work is discussed on this thread from February 2024: Analysis of tryptophan metabolites ... in human and murine tissue...
Can AI or machine learning algorithms do the work for you? @mariovitali may have useful comment to make on the work he's done.
Maybe the reference to rubbish is the headline, which seems to me pretty odd.
Website: https://cureme.lshtm.ac.uk/me-awareness-day-2024-global-voice-for-me/ I can't find anything about the event on their website. Does...
In theory a great idea, but... Anyone doing a study should do a preliminary literature review beforehand to see what's been done already, so such...
I assume that's another of the 'Lightning talks', 2 mins + 1 slide. It would be interesting to know what other unevidenced stuff is being given a...
I think for a survey to be accurate it needs some in depth digging into what services are actually doing. If it's just a questionnaire sent to the...
That seems a pretty accurate article to me. Thanks, Hannah Sharland. I respect Sonya Chowdhury for her swift action once the problems had been...
I think the point of these closed meetings is that researchers can share unpublished research and discuss it. I guess Janet Dafoe is leaking bits...
I haven't been feeling well enough to sort out a coherent reply to Sonya yet, but am reading this thread, as of course AfME staff and trustees are...
Another thing I think AfME should consider is asking for recommendations of existing resources such as some of Charles Shepherd's MEA resources....
It could be done more informally. AfME is a forum member. They could open discussion vial social media, including here on S4ME of any of their...
I agree, @Sly Saint. I think we need to stay independent and be very careful about endorsing other organisations or letting them suggest S4ME...
I guess people who are colour blind wouln't be given this test.
Currently crashed so not able to say much. Very pleased by this response.
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