Good letters, thanks to everyone who submitted letters.
An interesting perspective, @boolybooly. I think I could write a similar description of what I experience in terms of symptoms, signs, function...
That is from March 2023. Thread here.
Let's wait and see what comes of this inquest, especially any recommendations made for changes in NHS severe ME/CFS provision. And the report of...
Yes, it's idiotic.
Some posts have been moved to a new thread: Exhaustion in ME/CFS, what is it and what causes it - discussion thread
Thank you for sharing your late wife Vanessa's and your experience. It is important testimony.
This is the description of the GET from this study from the Cochrane review:...
From the discussion: This improved ability to do more work may be because the exercise regimen was not associated with any relapse. This may have...
I have started a thread about the Wallman study: Randomised controlled trial of graded exercise in chronic fatigue syndrome, 2004, Wallman et al
However, the thing that stands out for me most in this trial is the description of GET, which is actually HR and symptom contingent pacing, as far...
Here are the fatigue scores: Mental fatigue GET group: Before 6.3 (5.6–7.0) After 4.5 (3.9–5.2) Relaxation group: Before 5.6 (5.0–6.1) After 4.8...
I have posted this old study because it's referred to in another thread Investigating the relationship between physical activity and Myalgic...
Randomised controlled trial of graded exercise in chronic fatigue syndrome Karen E Wallman, Alan R Morton, Carmel Goodman, Robert Grove and Andrew...
https://www.mja.com.au/system/files/issues/180_09_030504/wal10613_fm.pdf I'm not sure anything can be concluded about GET from the Wallman study...
From the substack article: Always that great confidence that 'rehabilitation can help some patients'. Maybe it does, if it gets them to slow...
Do you need more input from people with ME/CFS who are or have been provided with NG and other nutritional support about how it was made feasible...
You're doing a fantastic job, Nightsong. I'm sorry we don't seem to have anyone else well enough to provide such detailed summaries. I thought...
Can someone help me out of my confusion about FND? We have seen and apparently supported David Tuller spending a lot of effort getting people...
Thanks @Hutan, I stand corrected. I knew I shouldn't try to discuss FND. I have previously steered clear of the FND sections of the forum most of...
Separate names with a comma.
