This reminds me of something: some people look down their noses at calls to fund-raise or donate and think lobbying for research is morally...
These 2 studies were published: https://bmchealthservres.biomedcentral.com/articles/10.1186/s12913-017-2437-3. This...
I’ve also seen charities run by non-patients for other conditions make quite a lot of dubious decisions e.g. MS Society in the UK giving money to...
A problem with one or two “super charities” is that they will often then tend to be run by professionals rather than people with ME as they are so...
I found it in this file here: https://forums.phoenixrising.me/index.php?threads/earlier-version-of-pace-treatment-manuals-trial-identifier-etc.15109/
If somebody could store and post some or all of the questions that would be great.
Many of the CBT promoters in the Netherlands say their form of CBT involves encouraging patients to see themselves as no longer having CFS so I...
I don't recognise this characterisation that in the ME community in the UK there have been very few women who have been prominent or in leadership...
I recall that she previously has complained that the contributions of males with regard to the criticism of the PACE Trial have got a...
I could find no numbers mentioning this, but I did find the following: A reader could easily miss that
Thanks to Lou Corsius. I think he (and a fellow writer?) makes a lot of good points. However, I disagree a little with some of the points in the...
Sad for those this is true for (I might think a lot may catch up eventually).
These points seem reasonable to me:
Before I read the results, I thought the measure used might not be the best to assess what they called "academic performance". Someone with the...
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