Radio PSA "Get Informed" 60 Second Chronic Fatigue Syndrome Radio Script Transcript: SIC: Emotional under throughout. MAN: My memory is shot....
I’m not sure whether ME Action would be a good fit as unlike with patients, they might not get a lot of donations from the general public to cover...
Yes, I think there might be circumstances where that could be worth the money. By the way, people can complain about drug companies and their...
It is not clear initially, but if you click on "comment" you can see comments on this article. The article involves some ad hominem arguments.
I'm all for more rigour in academia and research so am pleased to see when questionable practices are exposed.
https://areomagazine.com/2018/10/02/academic-grievance-studies-and-the-corruption-of-scholarship/
Maybe a bit off-topic for the thread but I would have liked a diagnosis of CFS over nothing during the 5.5 years before I was diagnosed. Having...
Action for ME were using short videos in tweets recently associated with an appeal. People can share for free anything like that they like.
Somebody who was reading this thread noticed the entry for Kings College London and thought it might be worth highlighting the figure given for...
If one replies to the head of the NIH, a lot of people would read that as applying to the NIH budget: [MEDIA] I agree that the worldwide...
That reminds me: Canadian activists are looking for 80 something million dollars. I read in a National ME/FM Action Network publication recently...
Three of these were used in this paper: https://journals.sagepub.com/doi/10.1177/1359105317697324
Regarding the tweet claim that we are getting less than 1% of what we should, that’s not correct. Dimmock and others calculated a figure of $186...
I’m not convinced it says anything about the perils of conflating ME with chronic fatigue. The author could well have ME but not be severely...
I help run a charity that has a research fund so see what comes in. We have a few dozen monthly standing orders. A lot are from the long-term...
Actions can have knock on effects. For example, GPs were found to be more sympathetic if someone in their social circle had ME or CFS. Get more...
But as I understand it from this and previous conversations, you want to claim that we are exceptional and can't raise money ourselves. However,...
For quite a number of conditions, patients are not likely to raise much themselves or find it hard to do so e.g. dementias, autism, other...
I remain to be convinced the probability is high that a body like the MRC will give extra money to us because we claim we can’t raise much...
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