Free full text: https://jamanetwork.com/journals/jamapsychiatry/fullarticle/2716981 Original Investigation December 5, 2018 A Nationwide Study in...
Recovery percentages weren't presented for the study. However, the people with better baseline scores did a lot worse. It's quite possible nobody...
I think most people with ME or CFS would need more encouragement to pace and do less on some days rather than encouragement to keep pushing...
Not particularly exciting but just shows that lots of people would be motivated to try to use exercise to help themselves. If all that was...
UK charities and US nonprofits
Unfortunately, there seems to be no way now to do targeted Facebook ads for people with an interest in ME or CFS. My contact no longer wants me to...
Solve have done a number of plugs on Facebook and Twitter for one study that is recruiting in the last month or two.
Yes. I wasn’t complaining about people not taking part. I was pointing out that highlighting research studies that are recruiting is a practical,...
Also, it could put researchers off staying in the field if they think it will be too challenging to get subjects for studies. Few ME/CFS...
I hope they reached the recruitment target. They seemed to be slow doing so. Personally I think people with ME/CFS should be promoting studies...
GETSET is one
It's a bit messy as Cochrane don't pay people to do such reviews generally as far as I know, people volunteer. Though perhaps there are precedents.
Paper was received by the journal in August, 2017
Yes, we are fed a constant diet of people saying exercising is good for you. If anything, I think patients need to be warned this might not be the...
I wonder whether people really suggested they needed CBT or whether this is spin? The mental activity point is a good one, and is generally...
It would be interesting to note the breakdown between the two categories. I have written to thousands of people who have enquired to an ME/CFS...
Doesn't sound like the participants would have been able to give informed consent.
It seems plausible that someone like this who was so grateful to the physiotherapist might give biased responses about how much the therapy was...
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