It's not surprising, ME has been dismissed and described as 'mysterious' for decades. Just sweep it under the rug and look the other way....
How does the pain compare to 'ghost pain' from an amputation of a limb? They used to think that ghost pain was psychological, but later...
Neurogenic Orthostatic Hypotension
I feel light headed from postural changes and my heart rate shoots up when I drink coffee in the morning. I don't feel faint, but have to get...
I still haven't figured out why OI is worse in the morning for me. I'm quite fine starting around 6pm. Perhaps it's something else that is...
Same here, super fast.
I have no idea what they are referring to, but I do alternate nostril breathing yoga which helps calm my nervous system. It's quite effective...
My GP told me that women who have experienced hot flashes and other symptoms of menopause had a 50% lower risk of developing the most common...
I get hot when I'm in PEM (after exercise years ago). I've never had chills. But I do have low body temperature (95.6) for 2 days after PEM...
Yes the experiences are similar. I usually have to wait a few days to know the differences between flares and actual reactivation of viruses....
Also, it's important to include 'permanently disabled'. Yes, same in Canada.
I witness the shocking transformation of my face and posture when I'm at the hair salon. I'm sitting in front of the mirror from beginning to...
Is there a box where you can describe the nature of your disability? Can you attach a written letter describing it?
I believe Dr. Chia found enterovirus in an autopsied brain donated from an ME patient. It was never detected in the patients blood or stomach...
Richie Shoemaker's trial with low dose erythropoietin to lower CDa: https://www.survivingmold.com/docs/Treatment_of_elevated_C4a.PDF
I was going to write something until I realized that I misread "Mean symptom scores were significantly increased after exercise through the use of...
@Skycloud I think his behaviour makes it quite clear that he has no interest in engaging with anyone?
I had my first Pfizer end of June and second jab end of July. I have been experiencing a vestibular virus for almost 2 years and been quite...
Abstract Fast-replicating neurotropic herpesviruses exemplified by herpes simplex virus-1 (HSV-1) naturally infect the central nervous system...
Agree with you about supporting someone who supports you. I was thinking of my narc sister who went on and on about her flu after we hadn't...
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