Here's where the lack of reporting of harm from PACE(& CFS clinics) comes into play. Even if it's a null treatment it doesn't matter, it won't...
Has he though? I remember seeing a documentary in the 90s or early '00s about ME. They discussed a child who was a cancer survivor and then went...
This I think is at the heart of the sweeping acceptance of the work of Wessely, White, Chalder. They claim to be experts in ME/CFS, but are not....
I find my earplugs block the sound of the ensuite extractor fan completely. I reckon it's mounting is slightly loose and so it vibrates a little...
I agree with the distraction technique, if some noise can be tolerated. I find some noise more bearable than others- I love the sound of waves...
Doesn't it just! It would appear that not only is it believed can CBT replace medicine, it can also replace one's faith or religion. A snake...
Yes. I've had similar problems. It got really bad after a very noisy neighbour incident. After that stopped I still had periods where thought I...
I've tried it among a list a SSRIs and SNRIs I've tortured myself with in attempts to get better. I've always been completely clobbered by side...
While I agree this doesn't have anything to do with ME per se, I think it says much about the mindset of some mental health professionals....
It's a shame they equate ME to chronic fatigue, but then it appears they can't spell fatigue anyway. Still they acknowledge kids with ME need...
(Bolding mine) This being the GLAD study and so not necessarily how the ME GWAS will do things, but I wouldn't be happy with if my saliva sample...
@Andy, is there any more detail about the data sharing side of things we could go and look at beyond that paragraph. Also, I would like to say, I...
It's certainly food for thought, but if we are going to have any research done, of any kind there will always be the risk that some pillock is...
With regard to further contact, it might be useful to understand how this will work. Perhaps it would be helpful to understand more how this...
So, for the GWAS study the only questionnaires used will be the ones used by CureME as these are the ones needed to make a meaningful comparison....
Speaking entirely for myself I wouldn't opt-in to be recontactable by anyone other the original researchers should they need more information. I...
Good clarification, thanks @Andy! The concerns I raised were about what questionnaires would be included in the GWAS study itself and your...
....or as my old maths teacher put it: "the emptiest vessels make the most noise"
Re the questionnaires business (again). I agree with @Ravn and wouldn't have an issue with suitable questionnaires. Regarding the providing a...
Annoyingly, although I had sent inks through to the person who runs my local group, they didn't include anything about it in their newsletter....
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