*Puts more coins in the piggy bank ready to donate if @dave30th crowdfunds for another year*
Had to look that up. From wiki Yes. Given the Employer 's Handbook and the See M.E. Toolkit (now under review) I certainly don't feel AfME...
It's all becoming rather confusing..... The wording is curious. My (possibly incorrect) view is that AfME and MEA provide similar services as...
Definitely matches my experience. Too wired to rest and I don't know of anything that settles that down. Not relaxation or breathing...
The insidious thing about undermining the capacity of pwME to make decisions about treatments in this underhand way, is not only does it give the...
The snag is that peoplenhave the test and are identified as being at increased risk of developing something or other. They may be obliged to...
I agree with @Trish and @Graham, you're both right to be worried. At one point my employer told me it was likely I would always have symptoms and...
Now @Milo has mentioned lung cancer, it reminds me if a neighbour who died of it. The day he was diagnosed, the oncologist put his chest xray up...
I this what VES is saying is that we can do that until we have no breath left in our bodies, but if nobody with true power to effect change is...
My issue with the video (& possibly other evidence)is this- 1- if someone wanted to discredit a group of people who were opposed to them, then...
I can remember a couple of stories over the years of very young women with (possibly ovarian - gynaelogical at any rate) cancer. By the time of...
Welcome @InfiniteRubix :) @Action for M.E. has a rep who is a member here, but they went very quiet some time ago.
....but only for the patients. Nice little earner for those inflicting the damage, but they don't mind and so we don't matter.
You are of course right about the diversity. However - Some people can push a bit and seem to improve a bit in the early days. Then they push...
I think it's fair to say that AfME are fully aware of IAPT. If not that would be another massive failing to keep informed of events and I don't...
Not only that - in a fluctuating condition your "baseline" can vary day by day. Your "baseline" can be affected by the light, heat, noise, smell,...
Basically, while we are wondering how we can slow down if not put an end to IAPT, and we're still trying to explain to AfME that their advice can...
Well done @Trish! Great letter! Thank you so much for the time and energy you out into it. I hope it hasn't wiped you out completely. @Action...
Fair enough. This is part of my criticism of where they are though. They colluded with the PACE trial, their advice pages are poor and do not...
That is a rather good point. Unfortunately, it is AfME. That's the trouble - instead of advertising for a sponsored walk in aid of all the...
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