I think much of the problem stems from the fact that the medical profession is very reluctant or unable to carry out quality assessments on...
You've emphasised 2 very important points for me @Hell..hath..no..fury... 1) false hope is, in a way, worse than no hope at all. At least if...
Years ago I met an MS patient and as soon as she discovered I had ME, she told me she had only been diagnosed with MS for less than a year and a...
As far as I'm concerned, after the SEE M.E project, AfME can jog on.....
Also @Action for M.E. ... if you were providing advice on behalf of the DWP, were patients/claimants provided with any independent sources of...
It would be very interesting to know. AfME provide support and (unless I'm mistaken) have a telephone helpline for members to seek advice in...
I wonder how potential participants/patients in this project were identified?
How true this is.
Sexism aside, AfME are reinforcing the point about the need to take control though. If it can be done in a cohesive way, even if there are...
And our charities should be making clear there is a huge difference between a) being ill with an on going condition that can be made worse by...
It is completely irresponsible information to give to ME patients and anyone who comes in contact with them. In my own experience, despite being...
And then, of course, we also have the biggest charity AfME who seems to actively work against patients best interests at times.....
That sounds very useful.
I think given the current dire lack of knowledge, combined with the very bad information being spread by the likes of AfME GPs also need to know...
I also dislike the bit where they recommend reviewing the patient's preferred terminology to describe the illness and the symptoms prior to each...
I agree with what you say. However, I think the PR side is also very important. Why wait until validation trickles down from the medical...
I'm sorry @Hip, but reading through it does rather seem as if you're trying to play both ends against the middle. It seems very unclear to me....
I'm not sure what, exactly, an internist is. In the UK the GP would refer to a specific clinic or speciality - endocrinology, cardiology or...
I am unsure where Valerie is going with this - especially the sexism angle, but I think we do need to change our approach. As it stands, as a...
It might still be possible. If you were prepared /able to get a copy of your own records and pass on the information they required.
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