I'm not sure we can say anything at all about anyone who reported improvement because of the way the trial was designed and run, plus of course...
That seems like quite a handy summary. Helpful to show to doctors and or family or friends who want to know more.
An aside & a nitpicking one at that - Do we know that this is true? I seem to be on a gradual downward trajectory and I know of others who have...
AfME also had a member survey - I can't remember when now and if I recall correctly the responses there demonstrated harms from GET too.
I found that actually stopping and resting takes much more self discipline than any exercise regime, sports training or study plan ever did....
So, it sounds like the bottom line is that even for pacing there has been insufficient research and follow up to identify what works and what...
Hi @SamF, welcome to the forum. I have done many if not all of the things you describe. The most significant difference made to my life- 1....
My criticism of this is from my own personal experience. In the early years, before I learned from my mistakes I followed this type of advice. I...
I know that many people believe there are adrenal issues, however there is absolutely no evidence indicating that people with ME are any more...
I agree that there does seem to be an increase in allergies, but I would suggest that at least some of that increase will be down to better...
The thing with IBS is that many, many people suffer from it without ever developing ME. I had it throughout my life as did one other member of my...
That may well be true in some cases, but some cities like London in the 60s and I am sure industrial towns bad pea souper fogs that killed many...
Absolutely. Pacing is about protecting and improving quality of life. It has nothing to do with an overall goal to achieve more.
I think the stereotype/prejudice suited the BPS paymasters. If we take the Camelford (Wessely was involved) water contamination for example - the...
I don't know that they do. Even if they did mention them, that doesn't count as thorough research in my book. I believe that HR monitors may be...
In my case, I am the youngest rather than the first born. I have had problems with allergies all of my life. Another reason allergies may be...
When it comes to pacing I have a concern about about HR monitoring. I raise it here as it was mentioned previously in the thread. While there is...
I do believe this is true, for some patients. I naffs me off is the them and us tone. I don't/won't tolerate being pushed or dictated too. I...
I'd much prefer they just did their job. They don't let the patient lie around all day - even if that's what they might need. Since when and why...
At the milder end of the scale many don't take it seriously enough, or take on board BPS advice to steer clear of other patients, so they don't...
Separate names with a comma.
