Thought this might be of interest for some of the members of the forum. Was this a bit surprising for you as well? Advances in Methods and...
[MEDIA]
A greatly written account from an ME patient about the consequences of the NICE guidelines and the PACE trial. It's infuriating to read, and all...
A young ME patient has shared her story on a radio programme. This was humorous, relatable but also very moving. It lasts about ten minutes and...
New blogpost from initiator Nina E. Steinkopf. This time about the impossible situation for families with children with ME, when seeking help is...
I remember they were 46 members when starting up a year ago. Perhaps this means they've grown with 5 people since then. I thought they were many...
[MEDIA] [MEDIA] [MEDIA]
[MEDIA] [MEDIA] [MEDIA] [MEDIA] [MEDIA]
The "patient organisation" Recovery Norge, the one with MD Henrik Vogt and LP-coaches claiming ME is something you can recover from by your own...
If you're on Instagram I'd like to recommend SerIkkeSykUt (Don't Look Ill). It is by an ME patient who wants to challenge prejudice towards...
Another blog post from initiator Nina E. Steinkopf. She is working very hard on uncovering and documenting problematic aspects with the...
The Minister of Labour and Social Affairs answered yesterday. She doesn't see any reason to change the rules for now, but emphasise that rest can...
It says on their website that the seminars can be viewed via a link, and that more information will come during October. Konferenserna kommer att...
Politicians in Sweden are working for a ward for ME-patients in the county Västerbotten. For time being there is nothing offered to ME patients in...
Study from Norway on 124 patients with a mixed psychiatric population of whom 39 diagnosed with PTSD. Paper is published in the journal...
New blog post from initiator Nina E. Steinkopf. This time she has gathered a collection of the history to the BPS-approach in Norway. Quite...
The Norwegian ME Association - Rogaland County - will host two lectures about ME by prof. Karl Johan Tronstad (scientist who has been working...
My latest letter to Archives of Disease in Childhood I sent the following e-mail today to Dr Nick Brown, the editor-in-chief of Archives of...
New blog post from initiator of the petition, Nina E. Steinkopf which is also an answer to psychologist Nina Andresen's letter to the editor: Hva...
Separate names with a comma.
