Seeing recent comments from some of the most visible long haulers, they are all burnt out and in despair that nothing they do penetrates anything,...
The choice of this person to run this study is a decision for a planned outcome that will serve nothing for the patients. This is systematic...
[MEDIA]
Sounds like at some point it could be useful to ask the funding institutions what they think of continuously funding research whose only purpose...
The reality that people who deny chronic illness use bad faith arguments is slow to sink in but it is sinking in. Problem is people making...
This is a thread well worth pulling. At least if and once the NICE guidelines survive. For years we were told to shut up because there was...
How does anyone involved in this "decide" where someone lives? I'm not understanding the process here. Are they forbidding him to stay home? Or I...
I granted myself some poetic license ;)
True but I'd frame this more as medicine playing a game, this decision is entirely out of the hands of politicians, it's made by medical...
One notable thing I keep seeing is how all over-the-place research findings have been in terms of incidence rates. So far I don't really see much...
Moderator note: This thread is a place to post about Long Covid research that may not warrant its own thread. Research about epidemiology can be...
This is the often-seen Patterson and Yo, if anyone is wondering. Their claim is over cytokine patterns. As a rule of thumb, when the results are...
Kinda feel like pointing out that this is by far the most widespread opinion in medicine, it's just that people are usually not exposed to it and...
I freaking knew they were going to distort pacing as GET-lite and present it as a treatment/therapy. Because words mean nothing and everything is...
Last update it was stopped, about a year ago. Haven't heard anything since so fair chance they just took advantage of the pandemic to quietly end...
It's slowly dawning on long haulers that medical research may not be on the level people expect it to be. It took me years to fully realize this....
It's one of the smallest studies but at least it should be competent. IIRC Altmann is a long hauler and seems solid. But it so small, I don't see...
Framing this as "rehabilitation" is especially problematic considering this is what has been tried for the past damn year, entirely wasted...
Ah OK that could be good. As long as there are clear instructions it should be put to good use. It's blank checks that are never accounted for...
If you ignore the fact that we know it's useless, you still have to account for: why? Is this needed? Or simply an outcome that does not have to...
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