It might be that they did have enough informal data, perhaps from a few personal contacts, to back a decision to continue development? I guess...
I agree, but it's probably inevitable. If people are trying to discuss a phenomenon that isn't easy to describe succinctly and then stumble across...
PS: I've just realised that the final paragraph about the survey says this: You might also like to explain why you have not engaged with the NHS...
It's an important point. I'm thinking about emailing them to say so – since it's not a survey with fixed questions, it's easy enough to respond by...
I think the deafening silence here may be linked to the fact that few of us have actually had any of these interactions in the last two years. I...
Only just seen this thread, and the original article is no longer available – oh, God, I'd no idea he was a Sheffielder. I'm so sorry, we're not...
AtW began in 1994, so it was pretty well established by the time I first applied in 1999 (I've used it three times). I needed an advocate as much...
I seem to have been a static magnet all my flipping life. I get really big shocks every time I touch metal if I'm insulated from the ground, and I...
I just meant comparing the fatigue to that of cancer and MS. It was really helpful when speaking to those I didn't work with directly, as people...
This can be a sticky one, but my feeling is that it's better to use examples that a range of people would understand, and not get too tied up with...
I agree – I actually think attending meetings in person is preferable, even though it involves travelling and making yourself presentable in ways...
Things that helped me: Having my overall salary reduced by one week's pay to give me an additional week's leave. It allowed me to use a 'half...
Fascinating! Thanks for posting it, @Colin.
Just seen Dr David Strain on BBC News 24, explaining why Long Covid is different to other fatigue syndromes such as CFS. Paraphrased:...
I don't think we can, at least in many cases. A lot of common viruses cause a fairly characteristic range of symptoms, but unless a patient is...
I have it too, but I'm female and my doctor said it's much more common in women. Apparently, some people with it go on to develop autoimmune...
I think Dr Charles Shepherd of the UK's ME Association shares this lack of muscle pain with you. When researchers design surveys, it probably...
I forgot about this one. Mine is more my hands and feet, but they're always blue in the evenings. There might be a straightforward explanation,...
What a great idea for a thread. I'll start with major impacts that are not on my medical record, roughly in order of impact (might need to add to...
A bit of an aside, but when it comes to research on what happens in the body during activity and the resulting PEM, the need to ask everyone to do...
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