I re-registered with a different address, after the last newsletter failed to reach me (it wasn't caught by the spam filter). I received this one...
We can live in hope and die in despair! – as my mother used to say, rolling her eyes. But Katharine Cheston, whom I've not come across before,...
FFS! I have literally never come across one of these patients with 'intense irrational fears' and 'kinesiphobia' in 40-odd years. I would be...
It's not helpful for your letter, but I don't think we can know this in a way that's reliable enough to be useful. It could be 100%, as viral...
The only moment I've ever enjoyed was in the early 70s, when my mum was doing the Christmas pudding in her huge Swan pressure cooker that I...
I'm always impressed when people aren't scared of pressure cookers! The hissing noise my mum's made always frightened me to death, and 50-odd...
Yes, that's true for me too – I have much more of a sense of energy, muscle power, and (occasionally) feeling of wellness right at the outset, and...
Again a personal account, but the measurable signs of being in PEM or just being a poor state generally include: Resting heart rate Goes up from...
When recruitment for the GWAS begins here in the UK, patients will presumably have the option to register a 'I've been diagnosed with ME but I...
Oh, God, I wish. As soon as my bladder's full, I'm drenched in ruddy sweat! Seems to be a family trait, and nothing to do with ME...
I guess it really comes down to how much you need to use it for the bread proofing? If you haven't got other options – e.g., the old-fashioned...
Yes, it's easy to see this part of the problem. And it's entirely possible that answers may depend on getting at least partially to grips with...
It went on a lot longer than the 70s! :laugh: I lived with outside toilets until the late 80s, and rented my first ever house with central...
I think terminology is part of the problem. Like rehabilitation. An active process, e.g. physical therapy after an injury or surgery to help...
Interesting questions about shivering, but I'm not sure how much they will reveal. It seems to be a response that gets weaker as you get older,...
Blimey, I enjoyed reading that. :rofl::rofl::rofl: Obviously it's not a laughing matter. This isn't a barbed argument between warring academics;...
I haven't used one, but as I'm considering a pressure cooker myself, I had a look. And they look good! There are a couple of 'New, other' listed...
It's described variously as an opioid and not an opioid. It's converted within the body to a substance that works on the opioid receptor*, so...
That makes sense, thanks for the clarification. Not at all, and making a poll is a lot harder than it looks! (I know – I've tried and abandoned...
I sometimes take paracetamol (as well as tramadol at night), but it's not on prescription. Is there a reason you phrased it that way, @Sarah94?...
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