It's a great idea in theory, but I couldn't manage that when I was really ill. I was only mild/moderate, too. I couldn't even sit up for more...
100% agree. It would be good, though, to have validation from people who know what they're doing when it comes to actimetry. Otherwise,...
Yes, possibly! The question was prompted by the thought that it might be possible to extract more useful information than we realise from...
I've just looked at the thread about @Simon M's excellent new blog article: and read @FMMM1's comment: It strikes me that if we are going to...
Do they keep long, @lunarainbows? I hopefully won't need them so much now I'm not killing myself trying to work, but part of the problem was...
Thread split from NICE ME/CFS guideline - draft published for consultation - 10th November 2020 advice on how to combat my crash food preferences...
I had my second AZ vaccine on Sunday. The first injection made me feel better than I have for years, especially cognitively. I've had a good...
If you open up your 23andMe raw data as a text file, you can just search for an rs number. A relative decided to do ours a few years ago. The...
Just on the IDO2 mutations: I remember reading that at least some of the mutations show up in 23andME and WGS results, and that Dr Phair has...
The only intervention I've ever had is a nurse informing me that redheads have trouble absorbing enough vitamin D, but their bodies can actually...
You can't ingest it without touching it. Toxins aren't going to get through rubber gardening gloves, either. I planted mine when I moved here...
Doctors could help by being realistic about recovery times for post-viral illness. When a friend was diagnosed with breast cancer, she was told...
You'd have to be ingesting it, though, in order to get a dose in the first place – there's no chance of a cumulative effect if you don't. People...
Apart from the fact that a lot of expectations have been raised by the talk of long Covid services (people will obviously expect tests or...
I've grown it for decades, I love it – as do bumblebees, as the plants produce a lot of nectar. It rarely needs handling anyway, but it's easy...
There is a gap, though: the issue of teaching the recently-diagnosed patient to go against their own instinct to build up their activity levels...
merged thread New article, old story:...
Thank you for pursuing this so vigorously! Would publication of the finalised NICE guidelines add weight to that complaint? Persuading a...
I hit this too, though it wasn't that far ahead. As my pension's barely worth having anyway at £90 a month, and all income is deducted pound for...
Perhaps the biggest thing they could do to enable people with ME to take self-employed work when they can is allow them to step on and off ESA,...
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