I don't think anyone was saying that this SNP would account for most ME. I see it as a bit like C1q deficiency, which accounts for a tiny...
It almost certainly is. However, since the NHS at present couldn't implement an extended session of imbibition of alcohol in a fermentation plant...
I had no message about confidentiality.
There is bound to be a way to fit it in but the question is whether it adds a further 'aha' to the story. I am a bit preoccupied with other things...
I might add that if ME relates to a log jam in tubulin servicing via TPPP then it might be good news. There is no evidence for any progressive...
I might add that together with some other groups I am of the view that tubulin assemblies may well be where all conscious experience of the world...
I think its effects may only be found within cells. So yes, this would explain exactly why the mechanism of me is so hard to observe. Tubulin is a...
I would say it is intriguing but nothing more as yet - no hard association. But if DecodeME pulls out the same site it would be something major -...
I am puzzled by this @Keith Geraghty. I was not aware that DwME had had negative comments on twitter. It would be useful to know about that....
Yes. Sorry about the obscure sentence. I think we are talking about exactly the same idea. Tubulin biology is very complicated. TPPP is involved...
Mm. But we are told the company has been constantly talking to all the relevant people. Not just looking up a neurological list.
Not dumb at all. An inability of brain cells to process stimuli with relevant tubulin restructuring would make a lot of sense. If some basic brain...
And why does is this system now posted on an ME/CFS site? That doesn't happen by chance. If it is being promoted to the wrong people what else...
Well if that is what it is then the website should say so in a way people can understand. If they are interacting with NHS staff I doubt another...
No, multi system means pathology in many systems. It has done since I trained fifty years ago. And its use in the context of ME was designed to...
Your post tells me as a doctor what I need to know - that this is a horrible illness nobody understands. Unfortunately, the people who dreamt up...
I guess this tells Ian's story: https://www.openaccessgovernment.org/the-journey-to-building-a-patient-neuro-rehabilitation-platform/106369/ We...
And the patients are being remarkably civil. To accuse them of aggression and making incorrect statements (that are in fact correct) seems to me...
I would second Trish's comments @Ian NeuroProActive. It is completely opaque to me as a physician what your organisation is providing, other than...
Come off it @Ian NeuroProActive. The people here have their heads screwed on. The fact that you have had 'rapid adoption' means nothing. Maybe you...
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