GF bread is awful. I don't try to replicate bread, when I want a 'sandwich', ie something to spread things on and eat for a snack or meal, I use...
Good to hear from you, @Daisybell. I hope you can participate in the trial.
I haven't been following this thread much. I think a key point, surely, is that this test is designed for use with physically healthy people to...
I don't think Polybio is a lab. I think it's an organisation that raises funds and allocates them to whatever research they think worth doing, a...
I think I understand where you're coming from, @butter. We all want lots of excellent research that will make real progress with understanding...
This discussion makes me think of the billion dollars the NIH was given by the US government to research Long Covid, which as I understand it is...
The authors are all at Brigham hospital, Boston. Out of curiosity I looked at what references they used for ME/CFS:
The level of ignorance about ME/CFS is clear from their use of the term PEF instead of PEM, and describing it thus: And then of course supporting...
Thread on this research paper:...
In the examples you give, the perception of symptoms is accurate, you have symptoms of pain in your leg, or you have symptoms of weakness and lack...
This is ridiculous, the patient didn't have long Covid, she had about 7 weeks prolonged recovery from acute covid then got better. Many of the...
Hi @Nitro802, welcome to the forum. Can you tell us more about the article, such as where you hope to get it published and what particular...
It seems like the sort of situation where a next step might usefully be to take fresh blood samples from a restricted population group to enable...
If the microclots are, as suggested, an artefact of the process and only present in vitro, then the question that needs to be asked is, why are...
I met someone many years ago with ME who was an Alexander teacher. She moved very carefully and sat and stood very upright, but it made no...
I'd like to have been a fly on the wall for that conversation. I hope she gave him both barrels. The idea that someone so sick as Whitney is...
He may have been invited before the Walitt NIH study was published.
A very impressively thorough overview of the situation, @ME/CFS Skeptic. Thank you.
The BDI-PC is a 7 item questionnaire with each item rated on a 4 point scale (0–3). It is scored by summing ratings for each item (range 0–21)....
Hmm. I started reading but gave up. It seems to be a hypothesis from a non scientist based on cobbling together anecdotes, blogs by other non...
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