If the training is in the form of 'be a good listener, don't argue with or offer advice on how people manage their lives, and have a pile of...
I don't remember coming across this author before. She has written other articles and done talks on the subject. Since I can only read the...
Are they saying high degrees of perfectionism predicts improvement?
Wow, you have achieved so much good work in your first 5 years. What a team. :trophy@Thank you.
I think that's important. Single time point or single day upright and activity is not necessarily an indicator of health on that day, it needs to...
Do you mean financial incentives? I'm not sure what you are saying here. If we all worked on fundraising for research instead of using our energy...
That seems like cheating. They should report the overall figure, not cherry pick the one piece of data for those who did better that looks impressive.
I strongly disagree with the suggestion that patients should not be discussing the details of scientific research and should devote our energies...
I was also going to suggest time upright as a daily measure, ideally captured automatically with a wearable if possible. I think for 'in the...
I fainted a few times as a child and young adult before ME/CFS, but the cause was identifiable, eg standing too long in hot weather, severe pain...
We have several threads on this treatment, including a discussion thread: Stellate Ganglion Block treatment To find threads on other research...
I'm very sorry to hear you and your mother had such a hard time with Covid. A beautiful poem, as ever. Thank you. This part, inevitably, struck...
See also this thread: Works of fiction where characters have ME/CFS
Interesting question. I think FUNCAP asks for an average day over the last month, so it enables a sort of overview of our current state of...
Sounds like good news. Well done those who made this happen. I hope this suggestion that PEM only affects 'some people' with ME/CFS will be...
Fair point, @RaviHVJ, I was referring to treatments that are not prescribed on the NHS that have no basis. I also know someone in another country...
Maybe he had a visiting professorship for this specific project while still based in Sheffield.
How can something be 'a little better but no noticeable change'? If the change isn't noticeable, how do they know it's a little better? That scale...
Maybe write to the authors and ask how the figure was calculate. They shouldn't be reporting a figure without the clear source.
Chris Burton Department for Functional Disorders and Psychosomatic Medicine, Aarhus University Hospital, Denmark
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