I think Sarah's point was a bit different. She was responding to my questioning the level of exertion that participants were asked to rate as...
I've been trying to sort out why I find the FUNCAP easy to understand and do, and a useful and accurate reflection of my capacity in each domain,...
I've started a thread to discuss how different function questionnaires ask the questions and the options they give to choose for answers:...
In her talk yesterday, Sarah Tyson said, if I wrote it down correctly, that FUNCAP focuses on the consequences of doing activities, whereas her...
My aim with this thread is to focus on the way the questions are worded in each questionnaire and the options offered, not on the specific...
The ME Activity Questionnaire (MEAQ) Currently in development. So far the initial version of the questionnaire is under way, with pwME filling it...
FUNCAP Functional Capacity in ME/CFS FUNCAP link | Thread This questionnaire evaluates your functional capacity for a range of activities. No...
WHO Disability Assessment Schedule 2.0 (WHODAS 2.0) WHODAS 2.0 link | Thread In the past 30 days, how much difficulty did you have in.... 0 =...
SF-36 Physical Functioning https://www.rand.org/health-care/surveys_tools/mos/36-item-short-form/survey-instrument.html Physical functioning is...
Of course, especially if worn on the dominant wrist. There are ways to get around this, either by wearing on the waist or thigh, or by taking into...
No, we need other ways of taking that into account. There are quick tests that can show cognitive fatigue, I think, which could be useful eg how...
Someone hasn't done their research.
I have set up this thread specifically to look at the way the questions are worded and whether they adequately cover the specific problems of...
Health apps I'm aware of all offer a cholce of android or apple. Don't most smartphones use one of other of these?
Yes. I really don't understand why the research team on this project don't understand that. Or choose not to understand it. I found Sarah...
A pity it's only available to delegates.
The PACE trial used wearables 20 years ago. They used step monitors for a week at the start and were supposed to use them again at the end, until...
I generally prefer not to donate directly to ME research, but to do it through a charity which has a vetting system to decide which research is...
I watched Caroline Kingdon who talked about her experience of visiting people at home who are participating in the ME Biobank. She was excellent...
I have watched the first 2 talks. Sarah Tyson's section on her team's development of PROMs she said she expects the 3 tested so far on symptoms,...
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