I have signed up to attend. If I manage to work the technology, I intend to watch and listen to some of it, but not try to take notes or ask questions
Crossposted with Hutan. Huge sympathy to those with awful ongoing symptoms. For those dreading it, a bit of hope is that it's not so bad for...
I think we need to be careful in our criticisms of use of feedback, because we don't know what changes Sarah Tyson's team are making to their...
Thread here: https://www.s4me.info/threads/european-me-coalition-me-cfs-pledge-for-the-2024-european-elections.38784/
Lovely to hear from you Ian. Best wishes to your mother. Well done with the fundraiser.
And attribute that absolutely zero abuse to the disclaimer/warning? Seriously, of course no online seminar that invites audience participation...
Some posts have been moved to: Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024
Is this normal in webinars like this, or is it specially inserted because of mythology about abusive pwME? It seems to me to be pretty insulting...
They surely will have seen our letters and are free to read this thread.
Every pwME's efforts at pacing is a research exercise carried out by the pwME as we navigate every day's activity and rest. All I'm suggesting...
I think MEPedia is fine for historical information, but all the sciencey bits should be removed if no one is updating them.
I think I would have found it very helpful when I was newly learning to cope with symptoms and crashes and still working part time. It might have...
People with other chronic conditions such as asthma and diabetes are self monitoring and recording data on apps which help both with the patient...
Crossposted with Adrian. I think Adrian's idea is worth exploring. It wouldn't necessarily produce a long readout, rather, if I understand it...
The items in the S4ME Science library are getting out of date as we haven't had any volunteers to update it for several years. So maybe not the...
You've lost me. Can you explain? What is Sb? Are you suggesting these quack therapies are useful or what?
Interesting. Mine is quite different, headache, nausea, dizziness, fainting, inablity to eat, plus all the usual symptoms ramped up etc.
Fatigue is what I felt when well after a long hike, dancing all night or being up several times a night feeding a baby or caring for a sick child....
I think 2 weeks after I filled it in. Not sure now you ask.
Separate names with a comma.
