I beg to differ. there are real risks that partipants will feel inadequate because they can't figure out which option applies, that they will be...
Since there is no questionnaire we've seen so far that distinguishes whether people with LC experience PEM, as some do and some don't, this seems...
The Partipant information sheet pdf is dated 13th October 2023, so it's possible I read it when we did the first questionnaire. If so I've...
Has anyone had their email inviting them to have a second go at the activity quesionnaire that we did the first version of 2 weeks ago? I've...
Many thanks to John and @Catherine Ashenfelter for adding The Grace Charity for M.E. to the list of organisations supporting this campaign.
That their GP, primary care practitioner will have misdiagnosed them with depression, anxiety, 'we all get a few aches and pains, there's nothing...
Fantastic. Welcome to another 6 months of bashing your head against the BPS wall, @dave30th.
Thank you for continuing the conversation constructively. I'm sorry if my reaction seemed dismissive. Give him time. It's possible, especially if...
Thanks, @Braganca. I hope you're right. The problem I see with moving on from the problems with the Walitt Nath study's conclusions is that they...
Crossposted with Ravi's latest post. Are people 'harping on' about the intramural study? I'm a bit out of touch with what's happening. If so,...
I don't think that's a good reason for stopping funding such research. There's so much more that could be sensibly explored, including replication...
$63,407 97% of the goal and 2 days left. Looks promising.
I certainly agree that their own intramural studies led by Walitt and Nath are a failure and should be discontinued. They have shown themselves...
@cassava7 I'm so sorry to hear you are continuing to have such a difficult time. I wonder whether this post is of any use to you and your doctors:...
@MelbME are you likely to test a comparison group between intravenous delivery of saline etc and the equivalent quantity of the same solution...
Good. He had definitely gone rogue some time ago. I could never understand why Karl Morten thought he was a fit and proper person as a research...
Serving up a load of balls. Crossing the line. Underhand...
Oops, sorry, I should have done that sooner. I doubt people only see the OP of this thread, so likely no harm done.
Unbelievable. An NHS 6 week program at a tennis club for pwLC to learn to play tennis while also getting lifestyle advice. This from an NHS that...
The 16th Invest in ME Research International ME Conference 2024 28 June 2024 Wellcome Genome Campus, UK #IIMEC16 Advancing Understanding of ME:...
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