I did, although it was pretty brief. It related to my answers to the main questions, where I tried to give an accurate picture of my three broad...
I'd like to see the makers of apps that are trying to track Covid-19 make good provision for recording non-typical new symptoms, and encourage...
Yep. Simply didn't occur to the politicians that by telling people to do this, they're forcing the most vulnerable – those who're chronically ill...
Well, they're certainly being staggeringly thoughtless. It doesn't seem to have occurred to anyone that telling the nation to order their...
Absolutely agree! It's important that the researchers and clinicians meet face-to-face, though, as so much important networking goes on during...
They're pretty good, although it can be just as stressful when part of the system doesn't work quite as it should. My local councillors were...
Fingers crossed! It does have an antimicrobial in it, but it's one that doesn't cause allergies in many people. ETA: when I get down to the...
Thank you – I do get this, but don't need overnight care. (I'm also autistic, and would shift flipping mountains if it meant I didn't have to have...
Ah, okay – I can't make head nor tail of the award letters they send me! The recent one says they've awarded me a reduction of £989, but nothing...
Oh, that's good news! Mine's gone up, but only by £1 a month, so I can hardly complain. I live on a little social housing development in Band B,...
None of these (including the newly-added one that came from my WGS) appear in my 23andMe data from 2017. ETA: the 'likely benign' rs72657698 does...
As of a few days ago, there seemed to be plenty of surgical spirit available in the UK – I bought half a litre from Boots for about £4. I wouldn't...
I only have one showing up on this gene, rs58668703, which is assessed as rare, clinically significant, and pathogenic. However, PXE is a...
I haven't seen much written recently about the importance of hand drying, as well as washing. When my elderly mum was in hospital, they were very...
I received a survey from the Office for National Statistics yesterday, which I've just completed. They send them out fairly regularly, but this...
That's how I read it – I don't think they're directly comparing the conditions to each other, just giving a list of examples. Even severe ME is...
Me too, I've never heard anyone just say 'pem' to rhyme with 'them'. It'd be very unclear to anyone who wasn't completely keyed-in to discussions...
They've suspended face-to-face assessments for the time being, so your payments should just continue until you're notified of new arrangements.
It'll surprise no-one that significant adverse outcomes can occur, but the severity is really worrying. I wonder whether these reports will affect...
It'd be so useful to find out what is being taught in medical schools on ME. Not to put the information into the public domain, of course – simply...
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