Several people have had dismissive replies to individual complaints. I leave it to them whether they want to share them. The committee are nearly...
I think to complete the picture of what happens to people as a result of exertion, we need to also include PEF and DOMS So here's my summary:...
I found this article helpful: Jennifer Huizen: What is exercise intolerance?, Medical News Today, Updated on September 20, 2023...
It's high time these people were stopped from playing silly psychological games with sick people, and, worse, drawing unwarranted conclusions from...
It's a statement of fact, as far as I can see. The article mentions that Dr Tam is running workshops at her clinic with Raymond Perrin to teach...
I think the section quoted makes the project sound much broader than it is. What they seem to be aiming for is a set of PROMS, ie questionnaires...
The subject of why the MEA is paying for this project has been raised on another thread. I have been looking at what the MEA said: These are...
The biggest and most long lasting outbreak is Long Covid. I'm still hoping something might be found from all the research that might help shed...
It worries me that spokespeople from MEAction and Solve are promoting the Remission Biome version of patient led research. It's nothing more than...
I listened to it too. Basically most of the commercial companies providing poo testing are no good at it, and the advice they give you about diet...
Is it just me that finds the name PROfeel creepy?
I think it's possible that for many pwME who do a 2 day CPET they are heading into PEM by the time they do the second CPET, which, if they were...
Posts about a talk about ME/CFS at an FND conference run by King's Health Partners have been moved to: United Kingdom: Kings College London; South...
I honestly don't see the value in 'doing the stats' on this sort of qualitative subjective data. This whole field of developing measurement tools...
Does it say who gave that talk? It's appalling this is still going on.
Given that some people still believe the earth is flat, you're probably right.
Good riddance! This major cut in funding for Cochrane was the reason for the big reorganisation of Cochrane over the last few years, and the main...
I'll send you a private message.
I'll start a members only thread. Thread here
I share your concern, @bobbler, and am sorry such behaviour has been inflicted on our members and is causing so much justified upset. The whole...
Separate names with a comma.
