[IMG]
Bit random but I didn't want to to start another thread for this. I commented a few times on Henrik's nonsense in the past but haven't in probably...
I think this means some tweets inviting responses to the moderated platform they use but their systematic censorship of all comments on the...
PACE pretty much answered that question with the "usual care" comparison that showed no statistical difference that couldn't be accounted for by...
Weird, considering it's well-established that expectation is as irrelevant as the nature of the placebo, or even being aware of being given a...
Nah he's straight up lying. Dozens of us have argued with him very clearly and it's now clear that his most pressing grievance is that other...
For UK patients. If an MS patient isn't obvious and ME is suspected the guidelines recommend to do as little testing as possible and so the MS...
[MEDIA] There are too many good ones to single out, it's worth reading the thread. Surprisingly the usual friends-of-Sharpe and sock puppets...
Oh, most likely. Plenty of people view the chronically ill as a burden on society and medicine doesn't have the tools to filter those out. Some...
It sounds a bit like my early symptoms. It's hard to handle at first because it feels so much like constantly being on the verge of losing...
I suspect that most of those weren't diagnosed with ME but rather not properly investigated, delayed diagnosis instead of misdiagnosis, because of...
There is a lot of justified anger at playing it diplomatically because it has failed us so miserably in the past. Some of those who were spit in...
The responses on Twitter are pretty much on point, well-documented and factually correct so if it's a bait, it's a terrible one. Initially the BMJ...
Definitely quicker than this for severe bed-bound patients but that's about 10% or so. I've never been bedbound, thankfully. Plenty of otherwise...
I guess these people never heard of professional athletes and ultra marathon types. Do too much and of course you will fall ill. Do too little...
Thanks! Sometimes it works, but most Facebook embeds are blank for me. Though maybe it's the forum software. Oh well.
Finally someone who is working with the fluctuating nature, trying to catch flares in the act. I think this is a key aspect that needs to be...
This is so ridiculous. I already walk for 3-5 minutes about 5-10x per day because otherwise I get too much pain in my legs. I move slowly but I...
Alternative "intervention": fund the damn research that will identify the causes and target them for effective treatment. Millions were dying of...
Does malfunction have a different meaning than dysfunction or it's just the author's preference? Never seen the word malfunction in medical...
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