Thanks @Carly Maryhew for such great advocacy work, the references themselves are impressive! Now lets wait and see what they say...if anything.
Sounds just like pseudobulbar. Sorry you were experiencing this - sounds distressing.
Perhaps it is related to severity in some way? I agree that we get close to the edge of a lot of things emotionally when more severe. I also dont...
Yes, i also recognise this. This is me most of the time these days. I cry in children's animated films when something nice happens to the...
Thanks for the suggestion, sadly MCAS stops me from trying anything new. Sorry to hear this, i didnt know this was common in PWME. Mine emotions...
Haha - i thought you WERE a pirate already! Hope the dentist goes OK.
Thank you, and yes it is horrible.
i always saw emotional lability more as a seesawing of emotions, being perhaps overly emotional and crying easily etc. This is more a severe...
two years ago i had my first episode of uncontrollable laughing. It was incredibly embarrassing. I was playing a game with grown up children and...
I havent watched it yet, but your thoughts are interesting. I think it certainly is more complex. In my case i have only ever had an atypical ANA...
I didnt know that about his dyslexia, so feel a bit wrong having pointed it out now.
Good he has written this, but it is full of typos and errors, which is a shame. Needs a good proofread, hopefully the original letter was not as...
Halfway through...this just gets better and better. I want to keep throwing up quotes here, but instead, just go and read it!
What a great guy!
Im sorry to hear that - sounds like we are similar. Would be interesting to have a chat by PM about our illness and swap notes.
Do you have multiple family members affected? I do too. My birth mother (even better for research as i didnt grow up with her) has M.E, a...
Sorry, had a little chuckle at this one! Im really struggling to eat, dont tolerate a lot of meds, antihistamines not even touching the itching...
There is no definitive test for MCAS - some have it with no increased levels. Testing is not reliable unless the lab really knows what they are...
This is something i have thought about a lot in the past year or so. I joined a facebook group for PW Lyme, many had an M.E dx as well or instead...
Just watched the first one - thanks! I despair at how to get the correct testing and treatment in the UK. My mast cell keeps getting worse and no...
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