Yes, this comes across as harsh and unhelpful. If you have issues with the messaging of OMF, you should communicate with them (as it looks like...
What is Patterson going to do to you? Give you maraviroc? Let us know how it goes.......
Ugh “In his research on open-label placebos, he has found that they are most effective in providing some symptom relief in conditions that...
No comment [MEDIA]
So basically LC with symptoms of MECFS in fact, have MECFS.
They have $650 million in committed funds…. that’s like a lot. [MEDIA]
@leokitten Hey glad to see that you are still kicking—hadn’t seen you around for a while.
[MEDIA]
In this interview Ron Tompkins and interviewer seem to agree that LC is different from MECFS or at least do not make the case that they are the...
Worth watching. [MEDIA]
Can folks point out any studies that demonstrate that "Long Covid" at six months with MECFS symptoms is a distinct disease/syndrome/entity from...
Not formally--only on the FB page via polls. Not everyone will experience withdrawal from psychotropic meds....probably less than 50%.
“Upon going off of it, however, I found that all my symptoms actually got worse—worse, that is, than they were before I went on the medication to...
Paywalled—mentions glial activation. https://www.nature.com/articles/s41591-021-01382-x Biomarkers for neurodegenerative diseases are needed to...
Cognitive Rehab: One Patient’s Painstaking Path Through Long Covid Therapy NYT still not calling this MECFS. Patient did improve her cognitive...
Problem is also that maraviroc doesn’t work for MECFS. A “bunch” of people have tried it with no effect.
@jamari Good question. ME/CFS is likely in the brain. And typically neurons don’t regenerate much. So this is likely a problem....
Hmmm… maybe not so good….
Don't really understand the point of these methods only papers--they are likely done to boost publication numbers for authors for promotion and...
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