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  1. Jaybee00
    Post

    Intra brainstem connectivity is impaired in chronic fatigue syndrome, Barnden et al., 2019

    I agree that this may be an important paper. I am just not optimistic that there will be any way of fixing this. The track record on treatments...
    Post by: Jaybee00, Oct 23, 2019 in forum: ME/CFS research
  2. Jaybee00
    Post

    Intra brainstem connectivity is impaired in chronic fatigue syndrome, Barnden et al., 2019

    Hmmm. They don’t suggest any treatments in the paper.
    Post by: Jaybee00, Oct 22, 2019 in forum: ME/CFS research
  3. Jaybee00
    Post

    L-dopa for ME/CFS? Prescribed for a Patient on Twitter

    Did it work for/help the patient? No sense doing a cost/benefit if we don’t know if it worked....
    Post by: Jaybee00, Oct 12, 2019 in forum: General ME/CFS news
  4. Jaybee00
    Post

    A potential S4ME project: What are the basic science facts that ME advocates need to know and understand?

    Prognosis
    Post by: Jaybee00, Oct 5, 2019 in forum: Advocacy Projects and Campaigns
  5. Jaybee00
    Post

    MS research versus ME/CFS research

    For me, I have fatigue per se. This along with brain fog are my worst 2 symptoms. For me, fatigue is not a diversion, it is a real issue.
    Post by: Jaybee00, Sep 21, 2019 in forum: General ME/CFS news
  6. Jaybee00
    Post

    MS research versus ME/CFS research

    MECFS research should be able to leverage the huge funding for MS, especially, for symptom treatments. MS and MECFS both have fatigue and...
    Post by: Jaybee00, Sep 20, 2019 in forum: General ME/CFS news
  7. Jaybee00
    Thread

    MS research versus ME/CFS research

    So the big European MS meeting just finished a couple of days ago. The scientific program book is 131 pages long for a three day meeting!!...
    Thread by: Jaybee00, Sep 17, 2019, 34 replies, in forum: General ME/CFS news
  8. Jaybee00
    Post

    Why does levamisole help me? Mitochrondia, a7nAchR, Tryptophan

    Thanks for posting.
    Post by: Jaybee00, Sep 17, 2019 in forum: Drug and supplement treatments
  9. Jaybee00
    Post

    Cyclophosphamide

    In his recent talk at Stanford, Dr. Fluge mentioned (I think) that the cyclophosphamide open trial will need to be followed up with a RCT trial....
    Post by: Jaybee00, Sep 16, 2019 in forum: Drug and supplement treatments
  10. Jaybee00
    Thread

    Lucky Dog Show—EDS episode

    Saw this on TV by chance. Found it on the internet. [MEDIA] [SPOILER]
    Thread by: Jaybee00, Sep 14, 2019, 0 replies, in forum: Other health news and research
  11. Jaybee00
    Post

    Dogs Are Dying Suddenly in Norway

    Here is a CNN article...
    Post by: Jaybee00, Sep 11, 2019 in forum: Other health news and research
  12. Jaybee00
    Thread

    Dogs Are Dying Suddenly in Norway

    https://www.nytimes.com/2019/09/10/world/europe/norway-dog-deaths.html?action=click&module=Latest&pgtype=Homepage Lot of stuff going on in...
    Thread by: Jaybee00, Sep 10, 2019, 21 replies, in forum: Other health news and research
  13. Jaybee00
    Post

    3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019

    @Rain copaxone has been available worldwide for over 10 years now. Also available as a generic.
    Post by: Jaybee00, Sep 8, 2019 in forum: General ME/CFS news
  14. Jaybee00
    Post

    3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019

    Yup, good news....His lips are sealed.......
    Post by: Jaybee00, Sep 7, 2019 in forum: General ME/CFS news
  15. Jaybee00
    Post

    3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019

    anybody on here attending in person? Maybe someone can find out the status of the Fluge cyclophosphamide study publication? Long way to...
    Post by: Jaybee00, Sep 6, 2019 in forum: General ME/CFS news
  16. Jaybee00
    Post

    An Isolated Complex V Inefficiency and Dysregulated Mitochondrial Function in Immortalized Lymphocytes from ME/CFS Patients Missailidis et al. 2019

    Meaning that researchers should focus on tissue cells and not blood cells?
    Post by: Jaybee00, Sep 5, 2019 in forum: ME/CFS research
  17. Jaybee00
    Post

    Liver-targeted Nano-MitoPBN normalizes glucose metabolism by improving mitochondrial redox balance, 2019, Wu et al

    Mito PBN=? Peanut Butter Nutcrunch? Structure not defined in the paper nor is it in Ref 13 or 14. Did I miss something?
    Post by: Jaybee00, Sep 3, 2019 in forum: Other health news and research
  18. Jaybee00
    Thread

    Lipid profile is associated with decreased fatigue in individuals with progressive multiple sclerosis following a diet-based intervention: Results fro

    Lipid profile is associated with decreased fatigue in individuals with progressive multiple sclerosis following a diet-based intervention: Results...
    Thread by: Jaybee00, Sep 2, 2019, 1 replies, in forum: Other health news and research
  19. Jaybee00
    Post

    Effect of dalfampridine on information processing speed impairment in multiple sclerosis, 2019

    https://n.neurology.org/content/93/8/325 Dalfampridine improves slowed processing speed in MS Picking up the pace Accompanying editorial in...
    Post by: Jaybee00, Aug 29, 2019 in forum: Other health news and research
  20. Jaybee00
    Thread

    Effect of dalfampridine on information processing speed impairment in multiple sclerosis, 2019

    https://n.neurology.org/content/93/8/e733 Popular article Old MS Drug May Improve Cognitive Function https://www.medscape.com/viewarticle/916495
    Thread by: Jaybee00, Aug 29, 2019, 1 replies, in forum: Other health news and research
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