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  1. Jaybee00
    Post

    Cyclophosphamide drug questions?

    Hello, Anybody have any info on the status of the publication of the Norwegian cyclo study? It’s no longer early 2018. Maybe article needed...
    Post by: Jaybee00, Sep 7, 2018 in forum: ME/CFS research news
  2. Jaybee00
    Post

    The effect of physiotherapy on fatigue and physical functioning in chronic fatigue syndrome patients: A systematic review, 2018, Servadio et al

    @Keela Too ...yup, doesn’t make sense...
    Post by: Jaybee00, Sep 1, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  3. Jaybee00
    Post

    Randomised placebo-controlled trial of dietary glutamine supplements for postinfectious irritable bowel syndrome, 2018, Verne et al

    Was it any particular type of glutamine? Thanks (Don’t have access to article)
    Post by: Jaybee00, Aug 27, 2018 in forum: 'Conditions related to ME/CFS' news and research
  4. Jaybee00
    Post

    Hyperintense sensorimotor T1 spin echo MRI is associated with brainstem abnormality in CFS, 2018, Barnden et al

    Like tinnitus and narcolepsy....two dieseases with no cure.....ugh......
    Post by: Jaybee00, Aug 18, 2018 in forum: ME/CFS research
  5. Jaybee00
    Post

    Etoricoxib (Arcoxia) - Any experiences?

    https://blog.iodine.com/3-surprising-medicines-that-might-help-your-depression-d31f7f7869c6 See here also, but E>>C
    Post by: Jaybee00, Aug 15, 2018 in forum: Drug and supplement treatments
  6. Jaybee00
    Post

    Etoricoxib (Arcoxia) - Any experiences?

    Good, good, good. Has a potent mood-boosting effect also (at least for me). Here is study for Celebrex...but I find Etorioxib to be...
    Post by: Jaybee00, Aug 15, 2018 in forum: Drug and supplement treatments
  7. Jaybee00
    Thread

    Alpha-gal syndrome: Meat allergy linked to tick bites

    https://www.nytimes.com/2018/07/24/magazine/what-the-mystery-of-the-tick-borne-meat-allergy-could-reveal.html?action=click&module=Top...
    Thread by: Jaybee00, Jul 25, 2018, 7 replies, in forum: Infections: Lyme, Candida, EBV ...
  8. Jaybee00
    Post

    13th Invest in ME Research International ME Conference - 1st June 2018

    Thank you @BurnA Sounds like cyclo is still a possibility.... It would be nice to know if the "relief" experienced was temporary (like 1 or 2...
    Post by: Jaybee00, Jun 2, 2018 in forum: General ME/CFS news
  9. Jaybee00
    Post

    13th Invest in ME Research International ME Conference - 1st June 2018

    Still no word on the Noweigan cyclo study presented in the closed session? Thanks
    Post by: Jaybee00, Jun 2, 2018 in forum: General ME/CFS news
  10. Jaybee00
    Post

    Treating patients suffering from myalgic encephalopathy/chronic fatigue syndrome (ME/CFS) with sodium dichloroacetate, Comhaire 2018

    @ME/CFS If you are continuing to track the response in your patients, are the responding patients continuing to respond or are you seeing signs...
    Post by: Jaybee00, May 31, 2018 in forum: ME/CFS research
  11. Jaybee00
    Post

    30 & 31 May | Invest in ME Research international colloquium

    Yes, agreed.... But according to @Jonathan Edwards it will be difficult to do any blinded studies due to the nausea effect, etc. of cyclo so...
    Post by: Jaybee00, May 30, 2018 in forum: General ME/CFS news
  12. Jaybee00
    Post

    30 & 31 May | Invest in ME Research international colloquium

    Yes only today.....
    Post by: Jaybee00, May 30, 2018 in forum: General ME/CFS news
  13. Jaybee00
    Post

    30 & 31 May | Invest in ME Research international colloquium

    So we won’t get any update on the cyclo study in the public portion? Thanks
    Post by: Jaybee00, May 30, 2018 in forum: General ME/CFS news
  14. Jaybee00
    Post

    'Love Means Never Having to Say... Anything' - moving NYT article by PWME Jamison Hill (25 May 2018)

    It would be nice to get this translated into Chinese, Hindi/Urdu, Spanish, Arabic, French, Malay, Russian, Bengali, Portuguese, Punjabi, German,...
    Post by: Jaybee00, May 26, 2018 in forum: General ME/CFS news
  15. Jaybee00
    Post

    A Novel Nutriceutical Treatment of ME/CFS, 2017, Comhaire

    @Bill Same here--agree with this....
    Post by: Jaybee00, Apr 17, 2018 in forum: ME/CFS research
  16. Jaybee00
    Post

    A Novel Nutriceutical Treatment of ME/CFS, 2017, Comhaire

    @ME/CFS Dear Dr. Comhaire (hoping you are still here), Are you still tracking the patients in your DCA trials? Are they still repsonding to...
    Post by: Jaybee00, Apr 17, 2018 in forum: ME/CFS research
  17. Jaybee00
    Thread

    Ketamine mechanism discovery

    http://www.sciencemag.org/news/2018/02/anesthesia-drug-ketamine-may-fight-depression-muzzling-bursting-brain-cells...
    Thread by: Jaybee00, Feb 15, 2018, 4 replies, in forum: Other treatments
  18. Jaybee00
    Thread

    RITUXME phase III study--flow mediated dilation

    Hi, From the other forum, Marky posted the text below about the phase III study from an F&M slide from their recent presentation. Does @Jonathan...
    Thread by: Jaybee00, Dec 28, 2017, 4 replies, in forum: Drug and supplement treatments
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