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  1. Jaybee00
    Post

    Aripiprazole - Abilify

    I disagree with most of the above post. I had a real dramatic response that was more than a 10% improvement (went from moderate to mild) It was...
    Post by: Jaybee00, Nov 21, 2020 in forum: Drug and supplement treatments
  2. Jaybee00
    Thread

    Kinase inhibition in autoimmunity and inflammation Zaron et al. 2020

    https://www.nature.com/articles/s41573-020-0082-8 Abstract Despite recent advances in the treatment of autoimmune and inflammatory diseases,...
    Thread by: Jaybee00, Nov 21, 2020, 0 replies, in forum: Other health news and research
  3. Jaybee00
    Post

    Aripiprazole - Abilify

    For me I don't think it's a question of overdoing it, but rather that it just stopped working.
    Post by: Jaybee00, Nov 20, 2020 in forum: Drug and supplement treatments
  4. Jaybee00
    Post

    Mechanism for drug tachyphylaxis (poop out) in ME/CFS?

    I think you are probably correct about drugs that work in the brain.
    Post by: Jaybee00, Nov 20, 2020 in forum: Drug and supplement treatments
  5. Jaybee00
    Thread

    Mechanism for drug tachyphylaxis (poop out) in ME/CFS?

    It seems like some of us are losing our response to Abilify. Same thing happened with antivirals— they worked great until they didn’t. So why...
    Thread by: Jaybee00, Nov 20, 2020, 7 replies, in forum: Drug and supplement treatments
  6. Jaybee00
    Post

    Baricitinib reverses HIV-associated neurocognitive disorders in a SCID mouse model and reservoir seeding in vitro, 2019, Govegnano et al.

    https://finance.yahoo.com/amphtml/news/eli-lillys-arthritis-drug-gets-034748143.html Eli Lilly's Arthritis Drug Gets Emergency Use Approval For...
    Post by: Jaybee00, Nov 20, 2020 in forum: Other health news and research
  7. Jaybee00
    Post

    Aripiprazole - Abilify

    @Jessie 107 How long have you been taking Abilify?
    Post by: Jaybee00, Nov 18, 2020 in forum: Drug and supplement treatments
  8. Jaybee00
    Post

    Sleep meds poll

    I've seen this claim before about trimipramine not affecting sleep stages, but haven't ever really seen good scientific data on this.
    Post by: Jaybee00, Nov 16, 2020 in forum: Drug and supplement treatments
  9. Jaybee00
    Post

    Intravenous Cyclophosphamide in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. An Open-Label Phase II Study - 2020 - Rekeland, Mella, Fluge et al

    Some correspondence with Bergen... "There have been no further updates since the cyclophosphamide study was published in April this year...
    Post by: Jaybee00, Nov 16, 2020 in forum: ME/CFS research
  10. Jaybee00
    Post

    Kynurenine Trial in ME/CFS - Bergquist

    Also posted the above in the sleep meds thread
    Post by: Jaybee00, Nov 16, 2020 in forum: ME/CFS research news
  11. Jaybee00
    Post

    Sleep meds poll

    Discussion about day-time dosing of melatonin by Robert Phair here...
    Post by: Jaybee00, Nov 16, 2020 in forum: Drug and supplement treatments
  12. Jaybee00
    Post

    Sleep meds poll

    OK, but the trade-off is that the patient misses out on the best sleeping pill. The benzodiazepines for sleep are mostly half-measures. I’ll bet...
    Post by: Jaybee00, Nov 15, 2020 in forum: Drug and supplement treatments
  13. Jaybee00
    Post

    Sleep meds poll

    Ummm you forgot the gold standard. https://www.drugs.com/comments/secobarbital/ A perfect 10/10 rating. Physicians are so scared to prescribe...
    Post by: Jaybee00, Nov 13, 2020 in forum: Drug and supplement treatments
  14. Jaybee00
    Post

    Case Report: Not what it seems to be: Depression versus periodic limb movement disorder, 2020, Gupta et al

    Another example of a dopamine agonist/partial agonist helping with CFS symptoms
    Post by: Jaybee00, Nov 11, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  15. Jaybee00
    Post

    Open A Trial of Solriamfetol in the Treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Joel L Young, 2020

    Why not? I have daytime fatigue and would like to not have it. However, I would prefer to see a trial of pitolisant (Wakix) which works by a...
    Post by: Jaybee00, Nov 10, 2020 in forum: Recruitment into current ME/CFS research studies
  16. Jaybee00
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    https://www.medpagetoday.com/blogs/vinay-prasad/89564?xid=nl_mpt_DHE_2020-11-10&eun=g1139006d0r&utm_source=Sailthru&utm_medium=email&utm_campaign=D...
    Post by: Jaybee00, Nov 10, 2020 in forum: Long Covid news
  17. Jaybee00
    Post

    Call for submissions for special issue, "Biomarkers in Chronic Fatigue Syndrome (ME/CFS)", Biomolecules journal, deadline 30th June 2021

    This disease should have its own dedicated journal.
    Post by: Jaybee00, Nov 7, 2020 in forum: ME/CFS research news
  18. Jaybee00
    Post

    Restless legs syndrome

    Dopamine agonists, which treat RLS may also treat MECFS https://forums.phoenixrising.me/threads/how-i-solved-my-neuroinflammation.81625/
    Post by: Jaybee00, Nov 6, 2020 in forum: General and other signs and symptoms
  19. Jaybee00
    Post

    Trans-NIH ME/CFS Working Group Telebriefings 2020-2021 (next telebriefing March 30 2021)

    Any ideas for questions for Allison Kanas?
    Post by: Jaybee00, Nov 5, 2020 in forum: ME/CFS research news
  20. Jaybee00
    Thread

    Bifrontal transcranial direct current stimulation modulates fatigue in multiple sclerosis: a randomized sham-controlled study, Chalah, 2020

    https://link.springer.com/article/10.1007/s00702-020-02166-2 Active but not sham tDCS resulted in a significant improvement of fatigue at day 5...
    Thread by: Jaybee00, Nov 4, 2020, 1 replies, in forum: Other health news and research
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