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  1. Wyva

    News from Finland

    The funny thing is that Finnish, Hungarian (and also Estonian) belong to a language family that is unrelated to the rest of the European languages. Everyone else belongs to the Indo-European language family (English, Russian, Greek, Italian, etc, all of them) and even languages outside Europe...
  2. Wyva

    News from Finland

    I only know the words that are similar in Finnish and Hungarian (both are Uralic languages), like vér/veri (blood), száz/sata (hundred), kéz/käsi (hand), hal/kala (fish), menni/mennä (to go) etc. My family name is Szarvas, which means "deer" the animal, but the literal translation is something...
  3. Wyva

    USA: The White House: Memorandum on Addressing the Long-Term Effects of COVID-⁠19

    @rvallee It's in the section "Statements and Releases" and not in the memorandum itself. Here: FACT SHEET: The Biden Administration Accelerates Whole-of-Government Effort to Prevent, Detect, and Treat Long COVID
  4. Wyva

    Interview with Dr. John Greally on his ME/CFS research he is fundraising for (ME/CFS advocate Liz Carlson also talks)

    Yesterday I mentioned Raelan Agle in another post of mine and I also went and checked her channel and this is what I found, a video uploaded 5 days ago: I haven't watched it yet but Greally seems to associate himself with these ME/CFS coaches a bit too often for my taste. I don't know why he...
  5. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    There has been a conference organized by the "Consensus for Health Circle of Experts" where different kinds of academics (epidemiologists etc) evaluated the response to the coronavirus pandemic. It wasn't very positive, they found it unsatisfactory in several different ways, but that's not my...
  6. Wyva

    USA: InCellDx Dr Patterson - New lab service offering cytokine tests to Covid longhaulers

    Ah, yes, he is denying the ivermectin connection now (that's what FLCCC is mostly about). Let me quote an earlier comment of mine from this thread: "I had to educate myself quite early on on Patterson (and also the people pushing ivermectin) because they had a large social media presence and...
  7. Wyva

    Microplastics destabilize lipid membranes by mechanical stretching, 2021, Fleury & Baulin

    If anyone is interested and has the capacity for such things, there was even a movie about this quite recently (with Mark Ruffalo playing a lawyer as the main character): https://en.wikipedia.org/wiki/Dark_Waters_(2019_film)
  8. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    Campaign from Semmelweis University (regarded as the No. 1 medical school in the country) for children with long covid, where they are trying to help their rehabilitation by taking them to all kinds of fun activities the kids request, to the zoo, adventure park, gokarting, horse-riding etc. One...
  9. Wyva

    EDS, hypermobility, and the link, if any, to ME/CFS

    So, I know someone who has a post-viral disease and who was diagnosed with hEDS afterwards. She has been very afraid of also having CCI ever since and of having to undergo surgery and from time to time I have to dig up things to convince her otherwise. And today I've found this while I was...
  10. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    Oh, I've just seen this: General Practitioners' Psychiatric and Psychosomatic Academy VII. (29th April-1st May) Description: The course is an optional in-service training course accredited by Semmelweis University under code SE-TK / 2022.I. / 00114, with a credit score of 48 points. It is an...
  11. Wyva

    News from Australia

    Eye movements may be key to chronic fatigue syndrome diagnosis “What we’re trying to do is generate a unique ME/CFS signature based on characteristic changes to eye movements, a behaviourial signature that is specific to the disorder that can be used to help diagnose it and monitor the effects...
  12. Wyva

    Incidence of Lyme disease in the United Kingdom and association with fatigue: A population-based, historical cohort study, 2022, Brellier, Nacul et al

    In my own ME/CFS group there have been instances where people with chronic Lyme tried to convince group members that it is not ME/CFS they have but Lyme and should go to this and this doctor who will give them the correct diagnosis (because the standard test is wrong). Several covid long haulers...
  13. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    This is the second round of studies who have got funding from the Hungarian National Academy of Sciences for post-covid research. You can find the winners of the first round here. (I only list the medical ones, because in this case "post-covid" means literally everything, even the entirely...
  14. Wyva

    PwME and synesthesia

    Disclaimer: I don't have sound or light sensitivity but I have synesthesia. (Senses are weirdly connected in the brain: when music plays I automatically "see" it in my mind - movement, shapes, colours. I also "see" numbers and letters in colour - in my head it is a fact that 1 is white, a b is...
  15. Wyva

    Pain Association Scotland

    Yes, I think I should have included "not a recommendation" in my post.
  16. Wyva

    Pain Association Scotland

    Do you know this charity? I just came across this article that talks about how beneficial they are to people with chronic pain and someone with ME/CFS was also included: I have found their website and here is the "What we deliver" section in PDF. Excerpts:
  17. Wyva

    Perspective: Drawing on Findings From Critical Illness to Explain ME/CFS, 2022, Stanculescu, Bergquist

    I have just read your weekly research roundup on the MEA website. Thanks for pointing out that these comparisons in these papers are very stretched.
  18. Wyva

    I'm curious about lab testing for viruses (not COVID) Is this common where you live? If so, when did it happen?

    My trigger was EBV and my GP automatically ordered the test for mono because that is what he suspected. (I guess based on the gigantic lymph glands I had: my neck was literally wider than my head, not kidding. I had no fever at all but I 100% had the "glandular" part.) It was a test for both...
  19. Wyva

    Advice on mask-wearing to protect against Covid-19

    Same here. I went to do my weekly shopping and I was almost the only one with a mask though, there were only 1-2 others. My sister and her husband have changed their views on covid now and say it is not going away and they cannot live like this and want to enjoy life, so are taking these things...
  20. Wyva

    Eleanor Stein's 3 video series for ME/CFS, FM, ES and Long Covid

    I haven't watched the videos but I remember coming across her website in the past and that I found some odd things, for example: Or:
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