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  1. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    So I sent a message to the Academy about the presentation above and they replied (my message was a list of questions about it actually). They absolutely avoided the topic about patients' threats or the claim that dozens of doctors left the field, they didn't address it at all. They replied there...
  2. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    I have rewatched the video now and forgot to add one thing: he said the only reason LC is not called CFS is because doctors don't want to get involved in these kinds of things again, so it is just better to stick with LC.
  3. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    So I decided to watch the long covid symposium of the Hungarian National Academy of Sciences but I only got to the third speaker when I decided to give up (although I semi-watched the next two but I was also too annoyed to really pay attention - I didn't miss a lot though: they mentioned...
  4. Wyva

    BPS attempts at psychologizing Long Covid

    VeryWell Health: How to Cope With Post-COVID Brain Fog "Jackson said that psychological causes of brain fog should not be ruled out because anxiety can cause many of the symptoms. That said, he also acknowledges that "a lot of COVID survivors are a little cautious and uncomfortable when they...
  5. Wyva

    Severe Fatigue and Memory Impairment Are Associated with Lower Serum Level of Anti-SARS-CoV-2 Antibodies in pw Post-COVID (...), 2021, Molnar et al

    Full title: Severe Fatigue and Memory Impairment Are Associated with Lower Serum Level of Anti-SARS-CoV-2 Antibodies in Patients with Post-COVID Symptoms Abstract Background: Post-COVID manifestation is defined as persistent symptoms or long-term complications beyond 4 weeks from disease...
  6. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    These are the first studies on long covid that earned grant from the Hungarian National Academy of Sciences. There are more actually because they have awarded grants to non-medical studies too in connection with covid and also medical studies in connection with other complications after covid...
  7. Wyva

    Brain–Immune Interactions as the Basis of Gulf War Illness: Clinical Assessment and Deployment Profile of (...), 2021, Steele, Klimas et al

    Abstract The Boston University-based Gulf War Illness Consortium (GWIC) is a multidisciplinary initiative developed to provide detailed understanding of brain and immune alterations that underlie Gulf War illness (GWI), the persistent multisymptom disorder associated with military service in...
  8. Wyva

    Drop attacks as a subtype of FND: A cognitive behavioural model using grounded theory, 2021, Revell, Stone et al

    So my ME brain has totally read this as "Dog attacks as a subtype of FND". I guess I shouldn't give them ideas though. :speechless:
  9. Wyva

    ME/CFS, FM: Mitochondrial dysfunction ... cellular hypoxia, hypoperfusion, endothelial dysfunction, persistent clots, 2021, Chang, Figueredo

    I keep seeing this guy posting his writings frequently in one of the ME/CFS groups on Facebook (it is so frequent it is almost spamming). He rarely uses any references and when he does, they point to his own earlier writings with no references. I think in one of the Facebook comments he even...
  10. Wyva

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Chartered Society of Physiotherapy: NICE publishes new guidance about ME/chronic fatigue syndrome "The publication of the new guidelines follows a delay to the guidance earlier this year. At the time the Institute explained that this was due to the complexities surrounding the condition...
  11. Wyva

    Trial of Long Covid treatment - AXA1125 from Axcella Therapeutics, 2021

    More on this in the Guardian: UK launches trial of drug to tackle fatigue in long Covid patients
  12. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    Symposium at the Hungarian National Academy of Sciences on 16th November: Current issues in post-COVID syndrome There will be a live stream on YouTube too, so anyone can watch it. It will take place between 10:00 and 16:30, quite a lengthy event. The programme (Google translate): As you can...
  13. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    English-language article in the Budapest Business Journal. It is a promotional piece on long covid, an interview with someone from a private clinic, however, there are some interesting bits: This part is not particularly great: If no serious organ abnormalities are found, symptoms are often...
  14. Wyva

    News from Israel

    There's a new article: https://www.timesofisrael.com/feels-like-dying-israel-leading-world-by-recognizing-sorrow-of-chronic-pain/ It says that these rights are actually extended to chronic fatigue syndrome too, not just fibromyalgia and it puts a bit more emphasis on CFS this time.
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