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This thread is really useful, and I haven't come across it before. The 2019 thread is in the 'General ME/CFS news' forum. This thead is in the 'General ME/CFS discussion' forum (which is rather sparse). I would suggest the best location for both threads is in the 'ME/CFS research news' forum...

The APPG pages haven't been updated in a while and minutes are not routinely published there.

"APPG Report. Charles advised publication is due to be launched on May 25th at 1530 at Portcullis House, Westminster." I don't know anything about this.

Minutes from April Steering Group meeting: https://forward-me.co.uk/13th-april-2022/

https://www.bbc.co.uk/news/health-61255733 Seems that overnight the draft updated NICE guideline for osteoarthritis was published: https://www.nice.org.uk/guidance/indevelopment/gid-ng10127 I'm getting terrible flashbacks of this time last year.

I think you forgot the link. https://www.sciencenews.org/article/50-years-ago-psoriasis-cause-infammation-skin

I don't know enough about this area, but running a charity (The Optimum Health Clinic Foundation) alongside a LTD company (The Optimum Health Clinic) seems suspicious. From the accounts, it seems that the charity's income is mostly from the LTD, and that this money is used on overheads such as...

This is Maes' (co-author) pet-theory for ME/CFS (and other chronic illnesses). He is simply applying it to LC now. Nothing but a hypothesis paper.

This year's IACFS/ME conference is in July. More here: https://www.iacfsme.org/2022-conference-main-page/ I would start a new thread, but it is not clear yet if this is going to be streamed and that we can therefore participate in the conference somewhat. I suspect not.

This guy seems like a real dud.

Ok, I used the link in the post above and I can see the image now.

Yesterday, I sent the following email to GinP and the editor: Dear Gemma / Guidelines In Practice My name is Dr Dom Salisbury, and I’m a patient with ME/CFS. I’m also a patient advocate, and a member of the ME Research Collaborative (MERC) Patient Advisory Group. The Chair of MERC is Dr David...

This paper (https://mdpi-res.com/d_attachment/healthcare/healthcare-09-01331/article_deploy/healthcare-09-01331-v3.pdf?version=1634002990) cites another (reference 6: https://journals.sagepub.com/doi/10.1177/1742395316644770) that gives the 25% figure, but I can't access it. Edit: The 25%...

Please note that if this conference goes ahead, there may well be a significant number of presentations on long covid (specifically, I hope, on the LC cohort with ME/CFS or an ME/CFS-like illness). This is a reflections of the times, and a strategic decision to engage these researchers with the...

There are plans for an ME Research Collaborative (previously CMRC) conference later this year (September, if possible). We are currently putting together a draft agenda in the hope of approaching potential funders. The dates are not yet fully fixed. The conference will be hybrid (in-person and...

Which begs the question: is the infection gone if you have long-covid symptoms and there is evidence of viral persistence in tissue?

They've now edited to: "This is different to "long Covid", where symptoms persist after the infection has gone." and linked to the NHS page for long-Covid. :banghead:

I thought that, but Perrin seems like small fry compared with the BPS lot. I have known about him for years and still can't decide if he has good intentions or not.

A false statement that needs correcting. There is enough good evidence already that this is not the case in some patients.