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  1. InitialConditions

    Reducing fatigue-related symptoms in Long COVID-19: a preliminary report of a lymphatic drainage intervention, 2022, Heald, Perrin et al

    There's a lot of dodgy stuff going on. In the current issue of the journal there are 4 papers, and 3 are by the same author, Adrian Heald, who is lead author on this paper. I suspect Heald has a link to this journal and has suggested publication here. And the Conflicts of Interest is a joke. No...
  2. InitialConditions

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Guidelines in Practice and guidelinesinpractice.co.uk are now part of the Medscape Professional Network—working together to support evidence-based best practice. Access a personalised clinical news feed and tools to support your daily practice at medscape.co.uk...
  3. InitialConditions

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    David stated on a recent CMRC call that this article will reach thousands of healthcare professionals, probably via email subscription to the publication.
  4. InitialConditions

    Reducing fatigue-related symptoms in Long COVID-19: a preliminary report of a lymphatic drainage intervention, 2022, Heald, Perrin et al

    Once again, a totally meaningless study, because most of these patients will improve over time regardless of the intervention.
  5. InitialConditions

    'Believe ME' | BBC Horizon, 27 June 1988

    Yesterday I learned that sertraline affects endothelial function. The truth is that we really don't understand well how anti-depressants work, particularly SSRIs. They can have a strange array of effects. For example, fluvoxamine has possible anti-viral and anti-inflammatory effects and was used...
  6. InitialConditions

    United Kingdom: News from Forward-ME Group

    Thanks. Yes, there might be some material on that thread. I am interested in dicussion of their websites/materials/linked resources, rather than the services themselves.
  7. InitialConditions

    United Kingdom: News from Forward-ME Group

    There are some issues with this that I've flagged with FME. They've done the bare minimum and the webpage still needs lots of work. Do we have a thread here where we have discussed the material on ME/CFS services' websites (and any literature they distribute to patients)? I'm sure we've...
  8. InitialConditions

    United Kingdom: Nottingham ME/CFS Service

    Copied post. This thread has been created to discuss the Nottingham service and their online materials. There are some issues with this that I've flagged with FME. They've done the bare minimum and the webpage still needs lots of work. Do we have a thread here where we have discussed the...
  9. InitialConditions

    Vagus Nerve Stimulation

    I hope they were adequately compensated for their time. Perhaps in carrots.
  10. InitialConditions

    'Believe ME' | BBC Horizon, 27 June 1988

    If you mean in the research studies, I'm not sure. If you mean the patients followed in the doc, I'm also not sure, but there were four (I think), and two made good recoveries in time. They seemed to be moderately affected. Housebound etc.
  11. InitialConditions

    'Believe ME' | BBC Horizon, 27 June 1988

    If I re-watch, I will give a summary. But it's a few days now since I watched and I'm currently crashing.
  12. InitialConditions

    'Believe ME' | BBC Horizon, 27 June 1988

    This pre-dates the BPS school (as applied to ME/CFS). The psychs were saying no organic illness and basically blaming epidemic spread on hysteria or similar. Yes, there was biomedical research by Ramsey / Dowsett etc; in the film it shows a potential blood test to look at evidence of enterovirus...
  13. InitialConditions

    'Believe ME' | BBC Horizon, 27 June 1988

    I considered that but wondered if they degrade the video quality to keep file size down.
  14. InitialConditions

    'Believe ME' | BBC Horizon, 27 June 1988

    Cheers Adam. I was going to tag you to see if you had it!
  15. InitialConditions

    'Believe ME' | BBC Horizon, 27 June 1988

    If anyone is able to download from YouTube (for example, using YouTube Premium), please let me know. I'd like to save a copy of this.
  16. InitialConditions

    'Believe ME' | BBC Horizon, 27 June 1988

    Recently uploaded to YouTube. This was uploaded in 2021 by a different user, but was taken down shortly after due to copyright. "To be told 'your illness is all in the mind' or 'pull yourself together' is no help to people like Mollie Champion -14 years seeking a diagnosis and still not cured...
  17. InitialConditions

    Graded Exercise Therapy for Patients with Chronic Fatigue Syndrome in Secondary care: a benchmarking study, 2021, Smakowski, Chalder et al

    There's a sister set of articles (paper [Adamson] & response [Vink]) on CBT. https://s4me.info/threads/cognitive-behavioural-therapy-for-chronic-fatigue-and-cfs-outcomes-from-a-specialist-clinic-in-the-uk-2020-adamson-wessely-chalder.16242/page-8#post-346774
  18. InitialConditions

    Graded Exercise Therapy for Patients with Chronic Fatigue Syndrome in Secondary care: a benchmarking study, 2021, Smakowski, Chalder et al

    The Vink letter is here (and is itself a response to an article, I think...) https://www.tandfonline.com/doi/full/10.1080/09638288.2022.2048911
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