If it is going to kick off over the next few weeks, just a reminder about the PEM reanalysis palava. That was not professional at all. They lied to stakeholders about the reason for the delay, and they've done extra work after the draft that may have changed the recommendations.
Moved post
"Before leaving the committee I have recorded my views on some changes to the guideline that have taken place following the Stakeholder consultation on the November draft"
I suspect many stakeholders might be disappointed on Wednesday.
Charles has been stood down from the Guideline Committee, owing to 'conflicts of interest' and in particular a complaint made about a social media post he made...
That's outdated info, but I suspect even thought he has stood down as CMRC Chair, he will remain on FME Steering Group, though I notice he hasn't been at most of the recent meetings (probably too busy).
That's the Steering Group you're looking at, not members. The ForwardME members are generally (representatives of) the numerous different charities, and then some individuals.
There CMRC members are generally individual researchers, like Chris Ponting (who is Deputy Chair).
I presume Stephen...
The topic of ME services within the NHS was recently discussed at a ForwardME meeting. This was led by the charity reMEmber, who made some good points. I'm going to duplicate here, because I have a feeling this ForwardME link will likely change and may disappear.
reMEmber’s observations on the...
With Sir Stephen Holgate stepping down as Chair of the CMRC, things at the CMRC have been a little uncertain as of late. The CMRC also recently lost its secretariat, which was Action For ME. AfME, and particular Sonya, has become very overstretched over the last two years, with key roles in...
A new ForwardME website is live (https://forward-me.co.uk/). The CMRC PAG recently sent feedback to Andrew, the new chair, about the website, before it went live last week. We feel it needs significant improvement and numerous edits.
Minutes for the most recent Members Meeting on July 14 have...
https://www.bacme.info/civicrm/event/info?id=11
The aims of this event are:
To share experiences of the impact of Long-COVID on specialist CFS/ME services, professionals & patients
To receive updates on national and local progress on the integration of specialist fatigue management pathways...
This document has been discussed on Twitter over the weekend. I think it might be worthwhile comparing versions I and II, so here is a comparison of the two documents (if the link works as expected): https://draftable.com/compare/UgEqXBfVchrM
That's not what's happening. Dr Strain said he'd like to trial monthly vaccines for long Covid, based on the evidence of some patients improving after jabs.
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