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The chilling thing is that statistically, in terms of the numbers of people with ASPD (sociopathy/psychopathy) in high flying fields, there may well be a proportion of these researchers who know they are causing harm and do not give a toss.

IMO that is a distinct possibility.

I would be breaking the site rules if I said how this makes me feel. Instead I'll just invite us all to imagine the state of Miller's reputation in a few years time if the science comes together as predicted...

Thanks! Do you know if there is a time limit for responses?

Can patients reply or is it just 'professionals'? Aware it's a long shot but my experience (like many others I'm sure) serves as a very direct rebuttal to the ideas expressed in this piece (although saying that I haven't made myself read the entire thing yet) It might be valuble for doctors on...

Yes and whats worse the abuser is going round convincing everyone we're not to be trusted and they need to abuse us too for our own good... I need to see a gastroenterologist and this is giving me even more trepidation. When I spin the wheel with doctors it so often comes up BPS.

I cannot put into words how utterly demoralising it is to see the BMJ not only publish but request this article, especially during ME awareness week. That timing cannot be an accident. The most dangerous thing anyone ever gave me for my ME was false hope. Even if we cannot hold individuals to...

I know ME Research UK has funded some of Rob Wusts muscle biopsy work, so they might perhaps be a good fit?

Lets hope it really will say it in the history books.

I was offered a trip to Leeds (from Suffolk!) by an OT in 2023. Luckily my first reaction was to think that it sounded too good to be true and to come on here and see what people said...

There is something unspeakably sick about medical professionals saying that someone whose life was destroyed and ultimately ended as a consequence of listening to them actually just needed to listen to them harder and do what they said more. These people are absolutely monstrous. I really hope...

Yes I would happily donate to this project and I'm sure that others would as well.

Yes that is true, she did say that. I wonder who the company is...

Possibly stupid question- If it does turn out that there is a relationship between NK cells and drug action as opposed to disease process, is there a way to increase NK cell numbers in low NK patients so that when they get dara it kills enough b cells? Or would that be impossible/undesirable...

In the q and a fluge says that an american company is considering a trial of CAR T therapy for ME/CFS, but he thinks it's too risky at least at present. He says maybe in 5 years...

Thanks, very interesting! That would definitely explain some of the puzzling things about ME/CFS. He could really play, couldn't he! I'm a guitarist and while I was no Django Rheinhart my main area of talent was improvising lead guitar. When I had mild ME I often found that when I was jamming...

Can you say more about this?

Yeah, that's concerning, but it's two patients and the NK business could explain it. We will have to wait and see what happens to severe patients in phase 2 I suppose.

Wait was that 1700 pre or post treatment? I'm not clear

So is it possible the errant signaling might be affecting any and all synapses? Just sort of randomly throwing spanners in the works? That could explain why PEM symptoms can be so variable from person to person and even crash to crash. Or does it have to be somewhere specific in the brain or...