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  1. V.R.T.

    Long Covid in the media and social media 2022

    What we need is physicians like this sticking their necks out and publically countering this narrative in the media and among their colleagues rather than worrying about the damage to their reputation.
  2. V.R.T.

    Long Covid in the media and social media 2022

    Thank you. And I agree. More professionals need to challenge these narratives so the public can see it isn't a universal view.
  3. V.R.T.

    Long Covid in the media and social media 2022

    My heart sank when I saw his name. Very disappointed in The Atlantic for publishing him. The worst thing is that every time I read something like this I start gaslighting myself.
  4. V.R.T.

    Long Covid in the media and social media 2022

    https://www.theatlantic.com/ideas/archive/2022/10/long-post-covid-symptoms-mild-cases/670469/ The Atlantic hedging it's bets after the brilliant Ed Yong article from the other day...
  5. V.R.T.

    Can exercise attenuate the negative effects of long COVID syndrome on brain health? 2022 Teo and Goodwill

    Yes I worry about that. I could not tell the difference when mild and undiagnosed and jogged/worked myself into a moderate and largely housebound state, which declined to severe after Covid months later. I had had ME for over three years at that point so it concerns me when pwLC think they can...
  6. V.R.T.

    Closed UK: DecodeME updates, was recruitment thread.

    I completed the study today and wasn't chosen to take part. It is quite disappointing on an emotional level even if intellectually I entirely agree with all that's been said. I guess it's just a consequence of years of uncertainty and gaslighting by docs. But other than that I am hopeful about...
  7. V.R.T.

    Closed UK: DecodeME updates, was recruitment thread.

    Just to clarify I absolutely encourage everyone to take part, in case that wasn't clear.
  8. V.R.T.

    Closed UK: DecodeME updates, was recruitment thread.

    My only concern is that by excluding people with common co morbidities (if that is indeed what is occuring), is there not a chance that Decode will end up not studying a significant cohort of ME patients and therefore exclude them from future biomarkers/treatments?
  9. V.R.T.

    JK Rowling new book — chronic illness references

    I agree with a lot of what you're saying here, but just to clarify I meant that we as ME patients might do better to counter the 'whiny negative attitude' narrative and use it to raise awareness of how awful ME can be, as opposed to getting sucked into the argument around this other character...
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