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Snap!

Are we talking about machine learning of the kind PrecisionLife use or just LLMs?

Paxlovid for me but not for thee

Thats a good point. If the results are genuine, and thats a big if, they reported that the non exercise group did not have these changes in T cells. Which is interesting, even if they may not have been studying LC ME/CFS

These people are utterly shameless.

Could they possibly have found the opposite of what they claim? A t cell response to exercise that is the reason why exercise leads to PEM and sometimes deterioration in pwME?

I think a mechanism alone might be difficult to communicate. An effective treatment would be a different story though. If for example dara p2 is successful and people start getting it off label and a significant proportion go into remission like the pilot, word would spread like wildfire. And...

Yes Louise used to be my OT. Didn't know she'd gone to SNELCAS but the intake person said she was with the new service now.

Yes I have dealt with both. The long covid service were beyond useless. I have been transfered over to this new service from ECCH ME service. Who I hadn't heard from since my OT moved on a couple years ago. I have spoken to several people from this new service while setting up this appointment...

No idea but that's certainly not what I was offered.

I'm sorry - I hope your call goes better than mine but I was not impressed.

Just spoke to the new Suffolk ME and Long Covid Service. This is whats replaced SNEE. SNEE OT was mostly ok with the odd dangerous pacing up suggestion until my last phone call where they suggested shipping me to the notorious Leeds inpatient unit (of Miller et al. BMJ fame) And now this new...

Thanks. Interesting to see Campath discussed in that first thread.

In what ways could these processes be abnormal?

What kinds of cells/proteins etc could be providing signals that might provoke a T cell response?

'our team previously showed a striking immune dysbiosis in different blood immune markers, including changes in the functional capacity of mucosal associated invariant T (MAIT) cells and Th17 cells, and a decrease in the frequency of CD8+ T cells and natural killer cells in long-term ME/CFS...

But they are promoting a harmful and stigmatising myth about us in a national newspaper. People reading that some people with ME get better after confronting what they 'gain' from being sick in the Guardian today is going to cause tangible harm to pwME/LC, whether that's friends or loved ones...

The issue is that while your definition of the term here is reasonable and fits with theories of ME/CFS we have been discussing, the concept of 'central sensitisation' is intrinsically bound up with BPS psychobabble about people misinterpreting normal sensations and having false illness beliefs.

This is currently the second most viewed article on The Guardian. With so many desperate parents of kids with Long Covid right now, it is a dangerous time to be publishing these sorts of unevidenced and stigmatising claims. Obviously as Trish says this is the writing of a desperate parent, and...

Why? Why are they sure? This article is dreadful.