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Wow, this paper is a smattering of every type of "natural" pseudoscience imaginable. It's basically a bingo card. Antivax, autism epidemic, aluminum, even radio waves, it's all in here. I'm impressed at the amount of effort needed to write 500+ pages of word salad.

I'm not surprised many people with long Covid deny experiencing fatigue. The strongest symptoms early in my illness were neuropsychiatric--confusion, reduced concentration, inability to handle stress, emotional lability, increased PTSD symptoms. I thought that was the cause of my reduced energy...

Your first link needs fixed. It points to the same URL as the second one.

I have a feeling this will fall flat when they try to reproduce it. But if it doesn't, hey, it's a strange biomarker, but whatever works at this point.

I might be the exception in that my circadian rhythm issues manifested with the onset of my illness. I'm autistic and I had non-24 symptoms before getting ME, but I could easily control it and stay diurnal until I got ME. Then my symptoms made it hard to manage things.

Wow, they nailed it!

Wow, I can't believe that actually worked!

Yikes, I shower about 2-3x a week as well yet I have considerably better physical abilities. I have an odd mix of impairments.

Sound guidelines are badly needed, but the they will be mostly symptom management unless we continue increasing funding for treatment trials. They also need to consider the heterogeneity of Covid-19 sequelae. Someone whose muscles wasted away from 3 weeks in a coma will benefit from exercise but...

Highly validating and resonates with my own early illness experience. Both of our experiences completely contradict the biopsychosocial model. The BPS model: An actual patient's words:

There's no giant red flags in this paper but it just feels weird. This was a weird phrase: They need to recognize that PEM is a real barrier to things like exercise. What makes me most uncomfortable is how the authors only ever discuss how the individual responds to this, without mentioning...

Broccoli sprout powder? I think I'll stick to fairy dust smoothies for now.

I'm getting this test for me and disability (to lower the chance my benefits ever get cut off). If it's the typical pattern of lowered anaerobic threshold on the second day...it will do a lot to convince me. But also, I just realized, this involves both my physical and mental health. I've...

I'm not sure what value a qEEG or brain blood flow test would have because I'm autistic and autistic people are known to have abnormal qEEGs and patterns of blood flow in the brain.

Are you concerned about me getting worse? I can't conceive of a 2-day CPET harming me, I seem to be immune to physical LTSE (long-term symptom exacerbation). Once I played ice hockey two days in a row before I was diagnosed. I wondered why I couldn't get myself to do anything for like a week...

If you think I've made a strategic mistake, then how do I obtain objective proof my disabling physical symptoms have a physiological, not psychosomatic, cause, and objective proof of the exact illness I have (or as close as you can get)? What do I ask my doctor for? If I tell her I gave up...

Here is my update to this saga: I sent my 2-day CPET order to a local hospital, and they talked to the director of pulmonology (or something). He said that I should go to their pulmonlologist (whom I was scheduled to see on Tuesday). This appointment is extremely high-stakes because I don't...

I'm pretty adverse to the idea of getting the invasive CPET. Also, it won't confirm that I have PEM.

Fourth Covid shot scheduled for Dec 1. Since it's on my mind, I'll give my prior experiences. I tolerated the vaccine perfectly and didn't have an unusual negative side effects. 1st shot: No effect on daily life. Had a sore arm and a tiny amount of joint pain. 2nd shot: Made me feel sick for a...

We should screen people with Fibro for PEM before telling them to exercise because comorbid ME is so common.