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Radicalized on Lyme groups? As in, forums and such? Does this not sound a bit uncomfortably familiar on any level? I suspect many of them know. ;)

I wonder if VEGF is considered an immune marker, and if they looked at that seeing as how low VEGF values can be, I think, associated with cognitive decline.

Maybe I can field part of this question, at least the Lyme part? As with most things Lyme, it's best to look at history. Before PTLDS was pushed, Post-Lyme Disease Syndrome was promoted. The push-back from the Lyme patient community was loud and swift, and it seems that the "compromise" was...

Just from what you posted at top of thread.

Post-treatment Lyme? Seems political straight out of the chute. Doesn't bode well.

ME/CFS, Fibro, PTLDS, Mast cell disorder, dysautonomia, and now long-haulers. What a fraternity. Good to know the CDC has "established symptom management approaches". No worries.

A number of ideas race at me, none of which is likely good enough to capture the essence: Dereliction of humanity Patient betrayal Failure to think outside the box Failure to empathize Berlin Wall Syndrome, i.e., willingness to shoot innocents to help superiors or State Douchebaggery...

Do medical texts teach "post-acute"? Is that a thing? Or does it go a)Acute, b)Chronic, with recovery/convalescense/or death coming after either a or b? Acute = time limit. Chronic = indefinite.

My limited understanding of the immune system says first 30 days of infection, one's IgM antibodies are at play. If the infection is not resolved, those antibodies give way to IgG antibodies. As our medical culture is primarily focused on acute infections, clinicians are taught that IgGs are...

Yes, good stuff, and for us, unsurprising. But try telling your doctors or friends or family members that exercise can and does actually hurt some people, and although they may Yes you to silence you, they don't believe it. Exercise is a Linus blanket. It took generations to get this shit...

What constitutes a consensus? 80% or higher? Cerebral hypoperfusion as demonstrated by SPECT scans (vs MRI and PET), perhaps? Not sure about this as SPECT scans are more or less frowned upon in US for last few years...

You're welcome, healthy world. Your enhanced immunity is our gift to you. :)

Pathogens of all sorts would be considered for my list of ME/CFS causes, just as they would be for MS. I fully would expect multiple infectous agents to be behind discreet ME/CFS cases, i.e, enteroviruses cause ME for some, other viruses for some, bacteria for some, parasites for some, etc...

This.

Merged thread https://www.washingtonpost.com/world/2021/05/12/canada-new-brunswick-brain-disease/

Not what Dr. Steven Phillips, a TBD specialist was saying, and Dr. Steven Phillips and his patient - both Lyme patients at one time - were the lead for the podcast or whatever. Perhaps it happens later in the video.

This clip is way too long for me to watch in one or two sittings. It's close to 45 minutes long. Is there any part in its timeline that stood out as troublesome? I watched the first 10 minutes, and I saw nothing remarkable. ETA: The theme, at least early on, seems to be that anyone diagnosed...

This was my thought precisely.

Yeah, nematodes get around. I think I read somewhere a while back they've been found on a space shuttle after returning to Earth. They are widely dismissed as being a meaningful factor in TBD's, but... There's a boatload of things I'd like to run more tests on, including nematodes, if only to...

Got to love the authors that in this paper acknowledge not just chronic Lyme - pretty much every one did back then pre-vaccine craze - but sero-negative Lyme as well. I think two of them were among the dozen or so authors of the 2006 Lyme Guidelines.