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This isn’t really a “ u ok hun? DM me” part on the internet, but his sentence structure has gone to pot

People who’ve had chemo vomit at the sight of a hospital? Sounds Pavlovian and not very widespread.

It’s is all a bit bizarre isn’t it? If I were working there I’d be concerned about how Neil is carrying out his role - red flags everywhere.

I had the light therapy sauna several times. This was because I got free passes, and I was advised to try the red (you select the colour from the dial/menu) it made no discernible difference although I enjoyed having a free sauna.

Is he still being silenced then? You’d think they would want to give samples of blood to show Chris Ponting, it would be fascinating to see if they have the same patterns within as MECFS patients.

Is this the big research he was going on about the other week?Please someone ask him why PEM is delayed?

When they announce this major trial next year they think we’ll all have egg on our faces.

Pubs and restaurants! Even if the loo is on the same floor it’s a long walk. IF (a big if)

I had a year or two of spontaneous recovery apropos of nothing, then started to deteriorate repeatedly until the big one I’ve never recovered from. I’m quite glad it happened when I wasn’t doing anything different that I could peg it to.

Did you rest because militant anti-recovery people hid the lightening process and GET from you, and forced you to rest?

Yes, I know this is based on what some people have said to Dave30th, but I’d want to know why they felt they had been recovered longer than they had realised? Because it’s impossible to know! Is it a “loaded” statement? As per BPS theory that “militant anti-recovery activists” have convinced...

:laugh::laugh:

“Only the few baying for blood” presumably

I dream of a sanatorium, I read too much of the Chalet School books as a child! A place where you go for 6 months to rest, relax, take the air and the waters, read, sleep.

Yeah WOW I know I’m just a person, but I’m a person who used to have a corporate job. I just cannot fathom the emotive/personal feelings output with the MEA (and Tyson) organisations and their reps just don’t behave like that in my world! This language about people being “silly, nonsense, baying...

If I absolutely overdo repeatedly I get horrible vertigo which stops me doing anything

A side thought. I live alone with a cat, so I am able to control my environment. We often sit is silence, I don’t have to keep the place tidy/visitor friendly every day etc. I have had some time staying with relatives and I don’t think I could live with other people. They make noise, they talk...

Never heard that said! If I did, I’d argue that’s nonsense.

Good idea @Hutan, sorry to be a pest but can we have a yes/no poll on that thread as well?

Yes, my n=1 experience of sleep apnoea was terrible brain fog and noticeably poor cognition, which has been partially resolved by getting CPAP. The ME is still there, though.