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Quick question - animals need to move. Do the animals who have ME/CFS need to move? Are we speaking about animals (including humans) but disregarding the fact that there’s no evidence that other species of animal gets ME? So is it saying that everyone and everything which doesn’t have ME needs...

Really overweight, it’s always been 7, once it was 5 when I was quite unwell. Consistent over 20 years.

It’s giving pale, male and stale.

Ear clip Vagus nerve is Physios For ME’s project isn’t it? If the MEA aren’t giving a large amount of funding to Chris Ponting next, then they can go and implode as far as I’m concerned.

Well I couldn’t be the Chairman of anything, I’m not even on top of ordering groceries.

It’s a self-cancellation. They have lost the support of the people they claim to represent.

He’s about to get put in his place, I hope.

I can believe this. They’ve had enough of containing it, let him loose.

Absolutely. I’m no comms/PR expert, but this is like something from over 30 years ago! Way to pour oil on a fire. And the bigger issue is that now it appears the organisation is complicit. He may have just near demolished the MEA. Compare and contrast Sonya Choudhry’s recent apology...

Other people like this around them.

BPS do, look at Alistair Miller’s article.This is the same behaviour - invalidating to us, and straight out of the abuser’s playbook “If my phrasing gave the wrong impression, then I wholeheartedly apologise”. that’s not an apology, come on

If I had a pound for every “opinion” I have to close my ears to, I’d be a millionaire. As David Bowie said “I am whatever the greatest number of people believe me to be”. It was “just an opinion piece” means something to press regulators, but not to pwME having this nonsense pushed down their...

Why am I not surprised. I’ve only ever read the recent article and I just knew he’d be the type who would explain to me in depth that”mansplaining” isn’t real.

If you say unkind things to them, they die!

Good for #ThereForME for taking a stand. At the moment our best advocate seems to be Sonya, except that’s a conflict of interest with her position. And maybe the same with Charles Shepherd.

Yes they didn’t make that clear at all. It feels like that place is ablaze and CS is there holding a small bottle of water.

The sub post is a quote from the leaflet (not the view of the MEA we hope) see screening bonus flow chart from the same leaflet showing the factors which may perpetuate CFS- Guilt, denial, anxiety, stress, poor diet, boom and bust…

No that’s why I do screenies. I’ve added the text now.

I just looked they didn’t post this (that I could see) they’re currently fighting another fire they accidentally started @Trish does this need its own thread or is this thread the right one please? The post is about the University of Derby Long Covid research team winning an award. The MEA...

I agree with all the comments, but this is absolutely gold. There’s a pompous privilege in this endeavour, of the sort that has been phased out recently.