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  1. forestglip

    Trial Report [Abstract] - Individualised aerobic and resistance exercise training improves exercise tolerance in individuals with [LC]: [PERCEIVE], 2025, Howden+

    I think even if it was only people with PEM, you should expect that their VO2 and peak power will improve with exercise. I don't think we have evidence that muscles don't become stronger or the cardiovascular system doesn't become more efficient with training in pwME as opposed to healthy...
  2. forestglip

    Trial Report [Abstract] - Individualised aerobic and resistance exercise training improves exercise tolerance in individuals with [LC]: [PERCEIVE], 2025, Howden+

    So exercise improved physical fitness. Not the most surprising results in the world. No effect on quality of life.
  3. forestglip

    Trial Report [Abstract] - Individualised aerobic and resistance exercise training improves exercise tolerance in individuals with [LC]: [PERCEIVE], 2025, Howden+

    Individualised aerobic and resistance exercise training improves exercise tolerance in individuals with Long COVID: findings from the PERCEIVE randomised controlled trial E Howden, L Burnham, J Smith, K Whitmore, K Morrison, R Hoare, Y Sata, Q Huynh, T Marwick [Line breaks added] Background...
  4. forestglip

    Community Symposium on the Molecular Basis of ME/CFS Sept 5 (Stanford/Ron Davis)

    Videos from this symposium are on Youtube: Community Symposium on the Molecular Basis of ME/CFS 2025
  5. forestglip

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    Yes, here: https://www.s4me.info/threads/uk-justiceforme-fundraising-for-legal-case-for-uk-government-to-provide-specialist-me-cfs-medical-care.45941/
  6. forestglip

    Germany: ME/CFS Research Foundation

    Email newsletter pointed out that there's a page for tips and materials for fundraising on the ME/CFS Research Foundation website: https://mecfs-research.org/en/support/fundraiser/
  7. forestglip

    Preprint Virus Genome Sequences in the Blood of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients, 2025, Davis et al

    Human alphaherpesvirus 3 (HHV-3), which was found only in ME/CFS cases, is varicella zoster virus (VZV), AKA chicken pox and shingles. That's 6/17 people with ME/CFS versus 0/7 healthy controls with this virus.
  8. forestglip

    Health outcomes of patients in the Complex Chronic Diseases Program, 2025, Meagher, Nacul, et al.

    Letter to the editor and author reply: Re: Health outcomes of patients in the Complex Chronic Diseases Program Spencer Cleave, Thea Gilks, Isaac Rodin Selected paragraphs "We disagree with the authors’ conclusion that the absence of meaningful clinical improvement in their study indicates...
  9. forestglip

    Synopsis of 2024 VA Long COVID Clinical Guidance for U.S. Veterans: Part 1, Nervous System–Related Symptoms, 2025, Wander et al

    Synopsis of 2024 VA Long COVID Clinical Guidance for U.S. Veterans: Part 1, Nervous System–Related Symptoms Wander, Pandora L.; Awan, Omar; Neal, Jacqueline; Seidel, Ilana; Bell, Kelsie A.; Cassell, Andre; Fattal, Deema; Ng, Bernard; Pyne, Morgan L.; Rog, Lauren; Helfand, Mark [Line breaks...
  10. forestglip

    Integrated immune, hormonal, and transcriptomic profiling reveals sex-specific dysregulation in long COVID patients with ME/CFS, 2025, Shahbaz et al.

    Previous paper from many of the same authors has a very large overlap in upregulated genes. From thread paper: Upregulation of olfactory receptors and neuronal-associated genes highlights complex immune and neuronal dysregulation in Long COVID patients, 2025, Shahbaz et al
  11. forestglip

    Research to evaluate safety and impact of [LC] intervention with Ensitrelvir for National Cohort (RESILIENCE Study): [Protocol for RCT], 2025,Konishi+

    Research to evaluate safety and impact of long COVID intervention with Ensitrelvir for National Cohort (RESILIENCE Study): A protocol for a randomized, double-blind, placebo-controlled trial Konishi, Keiji; Yamamoto, Shungo; Sada, Ryuichi Minoda; Asano, Kento; Onozuka, Daisuke; Tanaka...
  12. forestglip

    “Everything Looks Normal”: Patient Narratives of Contested Legitimacy in Long COVID Medical Encounters, 2025, Rhidenour et al

    “Everything Looks Normal”: Patient Narratives of Contested Legitimacy in Long COVID Medical Encounters Rhidenour, Kayla B.; Thompson, Charee M.; Babu, Sara; Kelpinski, Lindsay F. [Line breaks added] Abstract This study examines how individuals with long COVID navigate illness experiences when...
  13. forestglip

    Australia: News from Emerge Australia

    Some might find the slides for these webinars interesting. Webinar 1: Assessment and Diagnosis Webinar 2: Managing Common Symptoms and Co-morbidities Link to main courses page: https://education.emerge.org.au/all-courses/
  14. forestglip

    Thesis A Comparative Study of the Coagulation Systems and Inflammatory Profiles of Patients with [ME/CFS] and Patients with Long COVID, 2025, Arron

    A Comparative Study of the Coagulation Systems and Inflammatory Profiles of Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Patients with Long COVID Hayley Emma Arron Supervisor: Prof. Etheresia Pretorius Stellenbosch University [Line breaks added] Abstract Myalgic...
  15. forestglip

    USA: News from the Workwell Foundation.

    Thread for the above study: Blood Flow To The Head Is Reduced in a Patient With Myalgic Encephalomyelitis With Confirmed Post-Exertional Malaise, 2024, Lee
  16. forestglip

    News from Aotearoa/New Zealand and the Pacific Islands

    I'm guessing it's this research: Experiences of accessing primary care by those living with long Covid in New Zealand: A qualitative analysis, 2025, Rhodes et al.
  17. forestglip

    What can the science on the impact of acute infections on cognition tell us about ME/CFS?

    Not really equal pressure. If you don't eat food, you will definitely die before too long. If you don't have energy to hunt or socialize, but live in a tribe, your chances of survival and reproduction might be lessened, but there's still a good chance you survive just fine with others' help...
  18. forestglip

    What can the science on the impact of acute infections on cognition tell us about ME/CFS?

    One possibility, though not sure how valid the argument is: Should there still be some decrease in appetite long term? At least until one's weight is nearly dangerously low.
  19. forestglip

    Post-Exertional Symptom Exacerbation after Sub-Maximal Exercise in Individuals with [ME/CFS] and Post-Acute Sequelae of COVID-19, 2025, Berardi et al

    Post-Exertional Symptom Exacerbation after Sub-Maximal Exercise in Individuals with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Post-Acute Sequelae of COVID-19 Berardi, Giovanni; Janowski, Adam; McNally, Samuel; Post, Andrew; Garg, Alpana; Sluka, Kathleen A. [Line breaks added]...
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