Search results

The temptation to list “intolerance- Other: Neil Riley” was very strong, but I resisted!

The NHS in UK has a policy to promote healthy lifestyles at every opportunity, there is no way they will stop interfering in your diet, it’s literally their policy to do so. I think I’ve had “why don’t you lose weight…I know you’re tired but just eat microwave meals” twice this week in...

It’s automatic, there is no choice. No thought.

Like any “stakeholder” patient groups can be there for window dressing and have no real input, or can be useful idiots. A selection of 5-20 patients aren’t a synecdoche and we need to stop allowing people to speak about them as if they are. BACME involved patients in their terrible chat-gpt...

Jesus that’s bright why is it so big?

To me it feels like nodding off, one minute you’re thinking “don’t do it, just keep going” and the next, you’ve lay down.

I get the “too many g” and the irresistible urge to just lie down, they are very different but leading to the same result. Kind of like a cold, I don’t care if it’s bacterial or viral, I feel ill. Sometimes I can start to feel faint, yet Ive never fainted in my life, the closest I have managed...

I always buy duvets from Marks and Spencer, reasonably priced and last well in my experience. Of course, they have excellent customer service & returns as well which is a bonus.

I think the bonus with the zero-g is that it’s made of a woven seat - it adapts to your body shape in a way cushions don’t. I’ve used one indoors when I was desperate, it was winter and I got very cold as it didn’t have a mattress. I was looking at these, cheap but decent reviews...

Retaining therapist jobs, yes.

I don’t see how the PROMS project has any crossover with ensuring the NICE guidelines are implemented, lol

You can opt in to be part of research in the NHS app. I haven’t, so I can’t see the screens. I don’t want to be bombarded with stuff.

I doubt the NHS spends money tracking whether they meet “guideline” standards. Although they do probably employ as many quality assurance posts as they do doctors, who knows?

It is also the old “silo” problem. Everyone does their particular part, and if they can’t help they pass you on to some other part. In reality, no part can help you.

It’s ok, nobody is doing care plans or following the guidelines.

Exactly, it’s dependent on what’s available in any local area which a local charity or group has set up. The chances are that a social prescription for a pwME is a lot of talking to and reading through offers we can’t access - various local community gardening, crochet and crafts and chair yoga...

Social prescribing is another myth - housebound people cant really join arts club, physical exercise or whatever. Connecting you to community groups - Ive only ever had negative experiences of self-organised patient type initiatives, I’m afraid. MLM, black market drugs, illegal drugs, stalkerish...

They’re only guidelines where the illness is of unknown eitology and there’s no diagnostic test or treatment, that’s for sure. Probably a bit different for your Cancer etc.

Quite.

There is no care. You can’t access something which doesn’t exist. Social services assessed I can have one visit per day for 15 minutes, the carer will microwave food and pass it to me. Any other domestic assistance I need to pay for myself. Adult services assessed my home as adequate, no aids...