Search results

Yes, here: https://www.s4me.info/threads/uk-justiceforme-fundraising-for-legal-case-for-uk-government-to-provide-specialist-me-cfs-medical-care.45941/

Email newsletter pointed out that there's a page for tips and materials for fundraising on the ME/CFS Research Foundation website: https://mecfs-research.org/en/support/fundraiser/

Human alphaherpesvirus 3 (HHV-3), which was found only in ME/CFS cases, is varicella zoster virus (VZV), AKA chicken pox and shingles. That's 6/17 people with ME/CFS versus 0/7 healthy controls with this virus.

Here's the second half of the results section:

Letter to the editor and author reply: Re: Health outcomes of patients in the Complex Chronic Diseases Program Spencer Cleave, Thea Gilks, Isaac Rodin Selected paragraphs "We disagree with the authors’ conclusion that the absence of meaningful clinical improvement in their study indicates...

Synopsis of 2024 VA Long COVID Clinical Guidance for U.S. Veterans: Part 1, Nervous System–Related Symptoms Wander, Pandora L.; Awan, Omar; Neal, Jacqueline; Seidel, Ilana; Bell, Kelsie A.; Cassell, Andre; Fattal, Deema; Ng, Bernard; Pyne, Morgan L.; Rog, Lauren; Helfand, Mark [Line breaks...

Previous paper from many of the same authors has a very large overlap in upregulated genes. From thread paper: Upregulation of olfactory receptors and neuronal-associated genes highlights complex immune and neuronal dysregulation in Long COVID patients, 2025, Shahbaz et al

Research to evaluate safety and impact of long COVID intervention with Ensitrelvir for National Cohort (RESILIENCE Study): A protocol for a randomized, double-blind, placebo-controlled trial Konishi, Keiji; Yamamoto, Shungo; Sada, Ryuichi Minoda; Asano, Kento; Onozuka, Daisuke; Tanaka...

“Everything Looks Normal”: Patient Narratives of Contested Legitimacy in Long COVID Medical Encounters Rhidenour, Kayla B.; Thompson, Charee M.; Babu, Sara; Kelpinski, Lindsay F. [Line breaks added] Abstract This study examines how individuals with long COVID navigate illness experiences when...

Some might find the slides for these webinars interesting. Webinar 1: Assessment and Diagnosis Webinar 2: Managing Common Symptoms and Co-morbidities Link to main courses page: https://education.emerge.org.au/all-courses/

A Comparative Study of the Coagulation Systems and Inflammatory Profiles of Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Patients with Long COVID Hayley Emma Arron Supervisor: Prof. Etheresia Pretorius Stellenbosch University [Line breaks added] Abstract Myalgic...

Thread for the above study: Blood Flow To The Head Is Reduced in a Patient With Myalgic Encephalomyelitis With Confirmed Post-Exertional Malaise, 2024, Lee

I'm guessing it's this research: Experiences of accessing primary care by those living with long Covid in New Zealand: A qualitative analysis, 2025, Rhodes et al.

Not really equal pressure. If you don't eat food, you will definitely die before too long. If you don't have energy to hunt or socialize, but live in a tribe, your chances of survival and reproduction might be lessened, but there's still a good chance you survive just fine with others' help...

One possibility, though not sure how valid the argument is: Should there still be some decrease in appetite long term? At least until one's weight is nearly dangerously low.

Post-Exertional Symptom Exacerbation after Sub-Maximal Exercise in Individuals with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Post-Acute Sequelae of COVID-19 Berardi, Giovanni; Janowski, Adam; McNally, Samuel; Post, Andrew; Garg, Alpana; Sluka, Kathleen A. [Line breaks added]...

Looking at some of the 25 'critical SNPs' in the first PrecisionLife study on ME/CFS from, I see that one of them, rs237475 which was mapped to the gene KCNB1, is very near this most significant locus in DecodeME. This is the significance plot for DecodeME, showing the ARFGEF2 locus just a...

Long Covid course is ‘exploiting people’, says ex-GB rower

Saw a comment on Pubpeer for this paper by Marc Veldhoen, which links to a very long critique of this paper on his blog: https://marcveldhoen.substack.com/p/the-abuse-of-science-the-anti-science

I'm just suggesting that, even if imperfect, it makes more sense than the criteria being a mishmash of random symptoms that don't really even seem related. For example, one requirement for CCC: So you could fulfill this specific category (which to be fair is only one category of the criteria)...