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  1. MrMagoo

    The ELAROS NHS digital system for patient/clinician digital sharing questionnaire data, includes Yorkshire Rehab. Scale and Open-OH app

    I can’t do the quote thing. Tyson and Gladwell’s PROMS is now being called the MEA’s clinical toolkit which will be accessible through Elaros’ new OH app as per link/screenshot the OH app beta-testing has its own thread link on last page
  2. MrMagoo

    The ELAROS NHS digital system for patient/clinician digital sharing questionnaire data, includes Yorkshire Rehab. Scale and Open-OH app

    The conversation is happening across two threads as well, it’s getting confusing because it’s relevant to the ME Association, PROMS, etc
  3. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I suspect that there are worse snake oil sellers on Insta and TikTok making much more outlandish and unfounded claims. I notice a reference to helping “some” people on his little slide, that “some” is doing heavy lifting.
  4. MrMagoo

    The ELAROS NHS digital system for patient/clinician digital sharing questionnaire data, includes Yorkshire Rehab. Scale and Open-OH app

    We suspect it’s nefarious. I think the facts are more like the DWP put some funding towards an NHS digital initiative which has come up with the app which is also relying on Tyson & Gladwell’s PROMs and the NHS will be maybe using the app when it launches. The concern is what the NHS might do...
  5. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    No matter, all you need is a meme to go viral. He doesn’t need to see it/have it on his account. It just gives the non-Paul believers a chuckle and let’s people know he’s not all that.
  6. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    How about a meme. It works if you are familiar with the Beckham documentary where Victoria tries to say she was ordinary working class, but then admits her dad drove her to private school in a Mercedes or something.
  7. MrMagoo

    The ELAROS NHS digital system for patient/clinician digital sharing questionnaire data, includes Yorkshire Rehab. Scale and Open-OH app

    Oh wow this is big news. Thisnisnt much of a comment, just trying to attract attention to the above. So the app and PROMs are all tied together, and with the MEA “we’re not recommending it” ok but you do seem to be funding it…
  8. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Ignoring him is the best policy. The second best would be poking fun at what he claims, ideally with a meme generator. Does he have a MEPedia entry? A regularly updated list of his, erm, “expert opinions” would be good. Typically these things do become more outrageous and unbelievable.
  9. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    We have to hope that, because it’s so badly made and outlandish, that people go ???? eh ???? When they see it
  10. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    These so-called treatments are not “banned” though. They were evaluated, found to be without merit, and are not recommended. I suppose LinkedIn doesn’t allow “community notes” like X It would be good if NICE could slap him down somehow for misusing their name. Or the School of Tropical...
  11. MrMagoo

    Using Heart rate monitoring to help with pacing.

    Oh I don’t pay any attention to that score thing.
  12. MrMagoo

    Using Heart rate monitoring to help with pacing.

    Visible is based on the workwell foundation HRM advice. The heart rate zones they use can be customised if you don’t like the ones they suggest to you.
  13. MrMagoo

    Are gallbladder problems a common secondary symptom in ME/CFS ?

    Well slow digestive transit would be a possible “link” to ME as many people have issues with that as they become more severe.
  14. MrMagoo

    Are gallbladder problems a common secondary symptom in ME/CFS ?

    Apparently slow digestive transit can lead to gallstones. They can be linked to cholesterol too, which can be genetic as well (healthy people can have high cholesterol despite good diet). It’s possible to get them if you’re slim, it’s just a higher risk/more likely if you’re overweight etc.
  15. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I’m still reeling from the revelation that he’s not even n=1
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