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I've taken lots of abx for long periods of time, many times over the past 10 years or so. But I was symptomatic for ME/CFS for a decade before ever I ate those abx. Still, when I first started these protracted abx periods, they helped mitigate my symptoms. They never bothered me. Now, however...

Or also too often, what the doctor thinks is important.

If they said they found no evidence of pathogens (sorry for my memory lapse), this would logically border on the absurd given the samples were from the U.S.

"Patients'Experiences of Disease Should be Taken More Seriously, Study Says." Even the title is patronizing.

Well, sure, maybe. Depending on what you're looking for and the diagnostic, certainty can be hard to nail down. Regardless, I am no fan of long-term abx, at least not for me.

Perhaps more individuals being told more recently they test negative to a wider array of pathogens, as more are being tested for? Since many diagnostics flat out suck, some of those reporting no infectious onset, or they do not know, may simply have been incorrectly informed - which would change...

I agree with everything you've said here @Andy . I was in an ME/CFS study once a few years back that in part tried to assess PEM through two CPETs and fMRIs. I was in a hospital for the testing four days, if I recall correctly. Blood work drawn every few hours for those four days and nights...

"Have you ever been told by a doctor that you have CFS or ME?" is not really meaningful. You think most doctors - or other "health professionals" - in the US understand what to look for? This was a garbage diagnosis 30 years ago, and it remains a garbage diagnosis for most clinicians - who were...

I wouldn't be surprised if this, if accurate, is more peculiar to the US than some other countries, and reflects the folding in of many vector-borne diseases.

Doesn't sound like anything much to be concerned about if I'm an uninformed clinician. Especially the "and other symptoms" part. Or the "activity-limiting fatigue" for that matter. So, Deliverance types. Reckon tending stills and picking banjos instead of working for a living.

Enough of them know better. It's not all blind filial chanting. Although this study comes close, in my estimation. If you research Lyme, truly study its landscape for a long time, you realize there are no pat answers yet about persistence. That is criminal after more than 40 years. It's a...

Studies like this don't seem for me to be so much about science as they do churning out party-line rhetoric. Anybody here who's familiar with typical Lyme symptoms, check out Table 2 Baseline Patient Characteristics and see if that might be coming up short. And what does this even mean...

The primary determinant should be having clinically demonstrated LB. If you're going to talk causes of persistent symptoms, first order of business is being able to prove, unconditionally, Lyme and/or its co-infections (which can cause similar sequelae) have been eradicated - this in order to...

"No evidence was found for microbiological or LB-specific clinical determinants of persistent symptoms, but an association of host immune responses with persistent symptoms was observed." No evidence at all? None? With close to 300 Lyme patients? I'd have thought there might be some somewhere...

Whatever happened to "Opportunity cost is the highest valued opportunity lost"? I'd hope to see a stab at that in any meaningful estimate. The lost potential never realized.

A nesting doll of theories within theories, but cool, regardless.

They may be able to learn from CFSAC's story.

I confess I am a bit bemused by the broad indifference to IgG values that characterizes the greater medical community. It is my simple and arguably simplistic understanding that when infected, the body's first defensive response is IgMs. This lasts roughly 30 days. It can involve fever and...

I'd be lucky to get a 3T. When I tested normal with an MRI, it was with 1.5T. The times my MRI came out funky was with a 3T. If I had access to a 7T, I'd do whatever I could to see its results.

Depending on where one lives, there may have been many who were not really surprised. North central US, northeast US, west coast US...There, at least, there'd been precedent of sorts. Too often, this is what medicine is these days.