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    New Oxford Textbook of Psychiatry, 2012 and 2020 editions - Sharpe et al on CFS

    If their target audience was medical students, what better way to start teaching those future clinicians and researchers that it's "such patients" who present as an unstable challenge to "medical authority", than in a textbook, presumably used in medschool. The authors literally pit future...
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    New Oxford Textbook of Psychiatry, 2012 and 2020 editions - Sharpe et al on CFS

    Textbooks are more dangerous than studies or articles. Textbooks carry an implied imprimatur of codified authority. Perhaps more damaging, textbooks imprint. Then they endure as authenticated reference materials, from classrooms and lecture halls to home studies and bookshelves. Hard to...
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    New Lyme Treatment

    https://www.bayarealyme.org/blog/research-funded-by-bay-area-lyme-foundation-identifies-new-investigational-therapy-regimen-capable-of-irreversibly-damaging-lyme-bacteria-in-laboratory-tests/ In vitro tested, so early yet.
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    The LIFT trial (OMF) - Pyridostigmine (mestinon) and Low Dose Naltrexone (LDN)

    Which of course got its start in the US at the University of Rochester. :)
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    The LIFT trial (OMF) - Pyridostigmine (mestinon) and Low Dose Naltrexone (LDN)

    Yep. It's been on the table in the US for quite some time. I don't think it's made any noticeable dent in enough of the broad ME/CFS community to warrant any excitement at this point. It certainly did not help me. But it could be different elsewhere I suppose.
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    Do you believe that “viral persistence” is the cause of ongoing MECFS and LC?

    IMO, this may be the crux of the matter, the pivot point around which the debate spins. Can we trust the diagnostic metrics that historically have been brought to bear?
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    Do you believe that “viral persistence” is the cause of ongoing MECFS and LC?

    At the very least, in many cases, part of a tandem. In some, the whole story. Too many prohibitions against tissue testing, too much sketchy goings-on with regard to specific pathogens for comfort.
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    The nanoneedle salt stress test – too good a clue to leave abandoned on the lab bench?

    Yes. Extraordinary implications for a significant portion of "healthy individuals." Potentially.
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    The nanoneedle salt stress test – too good a clue to leave abandoned on the lab bench?

    In this example, are they speculating ME/CFS could be a channelopathy? I do realize it's just an example. but the emphasis on electrical variations could be consistent with a channelopathy, in theory. If so, it would be an acquired channelopathy. Well, at least in part.
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    Dr. Anthony Fauci on Long Covid and ME/CFS

    What a thoroughly odd read. Left me with the feeling Fauci and the NIH never heard of Lyme disease. Or Bartonella. Or Babesiosis. Or....
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    New Long Covid non-profit 501(c)(3) org registered: Long COVID Foundation (LCF)

    It's easier, I suspect, to embrace a specific theory when the pathogen causing the root disease is widely known and uncontested. Add, potentially, the belief that the public has been misled at some point, that's a powerful mix. It's no coincidence they've mentioned chronic Lyme as a cautionary...
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    Open (MA, USA) “Brain Scan Study [PET-MR] of ME/CFS, 2023, VanElzakker

    I thought it said Boston area. It might help if they'd cover travel expenses, then they could recruit outside Boston metro.
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    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    This website is being widely applauded in Lymeworld. They seem to think the CDC is acknowledging Bb as a cause of persistent symptoms on the website. That is not the case. Moreover, and more pertinent as far as I am concerned, I cannot seem to find the word "disabling" in any of the symptom...
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    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    Absurdly understated. Another "aches and pains of everyday life" moment. Lip service. Not good enough. Worse. It's like an embossed invite for misunderstanding. This is low-hanging fruit for foraging BPS hillfolk. "Other symptoms are unexplained and general (e.g., fatigue or difficulty...
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    COVID-19 Recovery: Consistent Absence of Cerebrospinal Fluid Biomarker Abnormalities in Patients With Neurocognitive Post-COVID Complications, 2023,

    Heard this tune before. Still don't care for it. ETA: Maybe if they added the word "Conventional" in front of "Cerebrospinal Fluid Biomarker Abnormalities".
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