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Most people have no idea...

How could they not get 24 Lyme patients when Columbia is literally surrounded by areas that can be characterized not merely as Lyme endemic, but arguably Lyme epidemic? You've Connecticut to the northeast, Long Island to the east. New Jersey and PA to the west. Puzzling.

As an aside, but uncomfortably related matter: My wife just got a new pacemaker defibrillator. It comes with a wifi monitoring device that somewhat resembles Amazon's Alexa. She was told to leave it on 24/7 so they could always have her monitored. She protested on invasion of privacy grounds...

Well, not just incompetence and dysfunction. I'd add greed and legacy concerns and govt interests and laziness and corruption.

Sometimes I think medicine is etch-a-sketch art. You can create whatever picture suites you at any given moment, then erase and start over with an altogether different picture. If history stands for anything, I suspect that is what will happen with LC. Once the pandemic is truly in the rear...

I must admit I am not up on my Covid research. But if Covid is potentially securing priviledged sites in tissue, and it cannot easily be found in serum, short of biopsies (hit or miss since we've no way of knowing yet what preferred tissue might be), or autopsies (these days far from a given)...

"We anticipate that the most common sequelae to COVID-19 will be a postviral fatiguing syndrome and its persistent mix of somatic and psychiatric complaints in the absence of a clearly observable cause." Small wonder. What do they mean "in the absence of a clearly observable cause?" I was...

Seems to me there is an argument to be made for a correlate, a cognitive one. TEMMA: The Theory of Effort Minimization in Mental Activity. If there were, I would subscribe to it. I do my best to minimize concentration, strong emotions, math, judgement...I do not mean this ironically. I pay a...

Welcome, @5vforest ! I think Fallon's NIH excursion was slated to wrap up early this Spring. I'm not sure if covid has caused delays. The good news is it's a structured study. Bad news is I think it's on the small size, like 24 or so patients. With an annual infection count in the US alone...

Not sure about his talk, but technically the slide in question does not say EBV or SARS etc cause ME/CFS. It says x % of patients infected with those develop ME/CFS symptoms. Also, Chia is part of one of those research teams; it's a stretch to think Lipkin would be unaware of his efforts, but I...

I did not listen to the presentations, so perhaps it's folded into those, but I could not find anything definitive in terms of cohorts' distribution through the US. My sense, based on the slides, is that a majority are from within the US, and of those, most come from the NorthEast/MidAtlantic...

I was just being silly. I agree with you 100%. There are many things I struggle to convey these days, and sarcasm is one. My bad. But to your point that I highlighted, only in a good world with no agenda other that pure scientific inquiry. This is not a good world, and pretty much everyone has...

But they do realize medical economies like streamlined reasoning, stripped bare of some unessential, and essential, thought and effort.

Oh, FFS. What's next, functional death?

When I introduce to a doctor something I got off the web - which is A LOT - I try to note its pedigree. I point out its true source, e.g, researcher and publication, whether NIH-sponsored or otherwise. I have far too many clinicians AND researchers who are clueless to backstories they should...

If they are insinuating patients on the internet created the concept of chronic Lyme, they need to do some more homework. IDSA and NIH papers are laden with chronic Lyme references well back into the early and mid-'80's. There are a ton of case studies, the most famous (infamous?) of which may...

First sentence into the narrative: "The existence of a chronic form of Lyme disease is a source of worldwide controversy." No, it is not, nor has it ever been - at least for clinicians and researchers and patients with a bit more than a simple, superficial relationship with the disease.

Nonviable spirochetal remnants or debris is the theory IDSA-types try to run with.

Well, technically, "a" Lyme treatment. :) Incidentally, PCR's are far more likely to have a false negative when it comes to Borrelia, than a false positive, simply by virtue of the spirochetes aversion to blood.

Yes, I wasn't suggesting what was dropped in 1962 was either babesia or Lyme. Indeed, neither seems likely since, according to Newby, one of the crew members brought a contagion back with him and it infected one of his children with a "long, hard-to-remember name." The child recovered. But a...