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Thread for the above study: Blood Flow To The Head Is Reduced in a Patient With Myalgic Encephalomyelitis With Confirmed Post-Exertional Malaise, 2024, Lee

I'm guessing it's this research: Experiences of accessing primary care by those living with long Covid in New Zealand: A qualitative analysis, 2025, Rhodes et al.

Not really equal pressure. If you don't eat food, you will definitely die before too long. If you don't have energy to hunt or socialize, but live in a tribe, your chances of survival and reproduction might be lessened, but there's still a good chance you survive just fine with others' help...

One possibility, though not sure how valid the argument is: Should there still be some decrease in appetite long term? At least until one's weight is nearly dangerously low.

Post-Exertional Symptom Exacerbation after Sub-Maximal Exercise in Individuals with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Post-Acute Sequelae of COVID-19 Berardi, Giovanni; Janowski, Adam; McNally, Samuel; Post, Andrew; Garg, Alpana; Sluka, Kathleen A. [Line breaks added]...

Looking at some of the 25 'critical SNPs' in the first PrecisionLife study on ME/CFS from, I see that one of them, rs237475 which was mapped to the gene KCNB1, is very near this most significant locus in DecodeME. This is the significance plot for DecodeME, showing the ARFGEF2 locus just a...

Long Covid course is ‘exploiting people’, says ex-GB rower

Saw a comment on Pubpeer for this paper by Marc Veldhoen, which links to a very long critique of this paper on his blog: https://marcveldhoen.substack.com/p/the-abuse-of-science-the-anti-science

I'm just suggesting that, even if imperfect, it makes more sense than the criteria being a mishmash of random symptoms that don't really even seem related. For example, one requirement for CCC: So you could fulfill this specific category (which to be fair is only one category of the criteria)...

Sure, I think it'd also be valid to separate out people with well-characterized diseases.

Oh yes sorry mixed up my specificity and sensitivity. But yes, primarily focused on making sure there are as few false positives as possible. You mean excluding people who might have another condition that explains PEM? I don't really agree with that view. If they have PEM, they have PEM...

I wonder if instead of focusing on trying to create a questionnaire with optimal accuracy in separating healthy from ME/CFS, it might be better to think about making a questionnaire with virtually 100% specificity, at the cost of poor sensitivity. Meaning make a questionnaire where only people...

A post about LoCITT has been moved to a dedicated thread: LoCITT: Remote Long COVID Trial to Evaluate Repurposed Drug Across US

Linking ME/CFS Science Blog's social media thread the above summary is from: https://bsky.app/profile/mecfsskeptic.bsky.social/post/3m4iqml4rul2d

Chronic Fatigue Syndrome: A Moral Exploration of Illness and Accountability Jennifer McMurray [Line breaks added] Abstract Chronic fatigue syndrome (CFS) is a complex and often debilitating condition characterized by persistent fatigue accompanied by a variety of additional symptoms that...

Almost identical author group and a similar topic in this paper from February: https://www.s4me.info/threads/cross-sectional-study-evaluating-role-of-autonomic-nervous-system-functional-diagnostics-in-differentiating-post-infectious-syndromes-2025-milovanovic.42552/

The Relationship Between Hemodynamic Responses During Head-Up Tilt Testing and Parameters of Infection in Post-COVID Syndrome, Chronic Fatigue Syndrome, and Late-Stage Lyme Disease Milovanovic, Branislav; Markovic, Nikola; Petrovic, Masa; Stojanovic, Smiljana; Zugic, Vasko; Ostojic, Milijana...

I don't know how useful this review is, but maybe there are some interesting bits. I've only quickly skimmed through, but for example:

Genetic variations and cognitive function in fibromyalgia Selin Akdemir, Oznur Ozge Ozcan [Line breaks added] Introduction Fibromyalgia (FM) is a chronic pain disorder characterized by widespread musculoskeletal pain, fatigue, sleep disturbances, cognitive impairments, and mood-related...

Experiences and challenges of staying employed with chronic fatigue syndrome Surendran, Gopika; Jose, Tony P. [Line breaks added] Background Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a debilitating condition that affects individuals’ ability to engage in sustained...