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This is likely the future paper Garner was referring to on the BBC radio segment.

The Jake who asks a question near the end is Dr Jake Hollis who wrote the two confused Guardian letters recently.

I think the overriding factor is whether the LC patient has ME/CFS or not.

I am resurecting this thread to keep track of NIH grants/awards following discussions in another thread. Perhaps we can move this thread to the 'ME/CFS research news' subforum and use it to keep track of NIH awards....??

Perhaps we need a general NIH awards/grants thread, if we've not got one already.

Are your muscles tender to touch, especially during PEM? Pain is also not one of my major symptoms, but if I'm in bad PEM I can barely palpate some of my muscles, particularly in certain areas.

There are lots of related grants listed on the NIH link. Wonder if these have been discussed here...?

Ah, I see. In that case it's not actually wrong, as it's an internal link for the website indicating what class of news release the article is. Just a bit confusing.

i think this link needs fixing as it currently goes to a generic page. The NIH grant is here: https://reporter.nih.gov/search/1u1EMRDAXEi6MB5HeUbWbA/project-details/10951972

There are companies that specialise in sending out multiple pairs of glasses through the post. I assume they will also do sunglasses. I can't remember the companies at the moment, but if you google 'try glasses at home' you'll get multiple hits. Not sure which country you are in.

They've hired a lot of extra staff over the last couple of years. In one of their annual financial reports not that many years ago they claimed they had only 6 full-time staff, or full-time equivalents. Can't quite remember now.

We know bedrest on the scale of weeks to months has consequences for our bodies, but, at some point, in ME/CFS, bedrest is likely a net beneficial, compared with trying to push through each day. There's no objective testing to show us at what stage this occurs, and it's likely different in each...

Agree. They know what they're doing; they are bored of having to engage with some of the more vocal/organised patient advocates, who are largely on X (and here).

AfME will soon cease social media activity on X. https://www.actionforme.org.uk/news/our-use-of-x/ Interestingly, this seems to be partly due to their having to respond to criticism from more vocal patients on X. That is my reading anyway. From the statement: "A large portion of our Marketing &...

There are a couple of papers and they did a study once via the NHS calling it a 'trial' but that didn't seem to go anywhere. https://bmjopen.bmj.com/content/7/11/e017521

It's the same article every few years, but Raymond still looks like he's living in the 1980s.

There's definitely a lot of bad science / poor papers in this field, and that's largely due to the nature of the illness, being somewhat poorly defined, heterogeneous, and misunderstood. Conflation with normal fatigue is obviously a clear problem and results in myriad terrible papers from people...

It's probably on purpose, given they had almost enough healthy females to match the POTS group.

This is a recent preprint — 2021 in the thread title should be 2024.

Interesting study and a nice, short paper showing that cortisol differences are minor, but there is evidence of low then rising morning cortisol in the LC-ME/CFS group. Seems they haven't controlled for wake time, which is a weakness. Also interesting to note the high prevalence of HIV in all...